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bone marrow biopsy 12 years 8 months ago #2048

  • ddunn
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Is this a normal procedure with ITP? Has everyone here had one? Can you share your knowledge or experience?

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Re: bone marrow biopsy 12 years 8 months ago #2050

  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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Many of us have had bone marrow aspirations. Some doctors still do them, but most rule out other reasons for low platelet based on CBC and other symptoms a patient has. Although, some doctors still do them, regardless of their thoughts on a patient diagnoses, just to be sure.

I've had 3 bone marrow aspirations, twice for ITP. Upon initial diagnosis in 1983, repeated in 1986 when I came out of a 2 year remission and had other symptoms besides ITP. The 3rd was prior to a stem cell transplant I had for autoimmune disease. I also have lupus and APS, along with ITP and was severely refractory to treatment. APS is a clotting disorder and ITP a bleeding disorder, so I was bleeding and clotting at the same time, which is why I choose to have the drastic treatment. It's the only treatment which has provided me with a remission from both.

I did not find the procedure that uncomfortable. I was scared to death before the first procedure, which was done in sternum, so I had a full view of the entire procedure. There was pain upon initial insertion of the needle and the numbing medication, but once the needle was in, it wasn't too bad, until they aspirate the marrow, that hurts, but was quick and pain ends as soon as the doctor stops aspirating the marrow. The second procedure was about the same as the first, although not as much fear was involved. Post procedure I felt like someone punched me in the chest, it was sore for about 10 days, but not exceptionally so.

The last procedure was a bilateral hip aspiration, both hips were attempted, but were "dry taps". The doctor could not get any marrow into the syringe. He tried 3 times on one hip and only 1 time on the other, before giving up. That was more uncomfortable to have dry taps, but most people don't have dry taps. He suspects my problems with dry taps were due to 25 years of immune suppressant drugs. I was in pain after the hip trys, but not too bad and it lasted about a week. I was bruised with those taps, but the sternum tap left such a small bruise, although I had been on high dose steroids prior to those taps, so my counts were normal. With the hip taps, my counts were about 30k and I was on blood thinners, so I was really bruised.

I really didn't find them all that bad, but I know some have very unpleasant experiences. I've heard that it depends on who does it. It was the same doctor who did the 2 sternum taps. The hip taps were done by a different doctor, but I know he does a lot of taps, as he works at a large university hospital, as did the first guy.

I had no pretreatment or drugs to anesthetize me, or make me relax. Both the doctors I had were really good about talking me through it and convinced me it wasn't necessary, which I appreciated, since I went back to work after the first 2 taps and after the third tap, we went out to lunch and shopping. Some people do get heavy medication to relax them and it's all up to you and your doctor. Some times I do wish I had something to relax me for the first, but that really wouldn't have changed the anxiety I had for the 3 days I waited for the appointment for the procedure, so I guess in the long run, I am just fine with how my procedures were managed.

Good luck to you, hope it goes as well as mine did.

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Re: bone marrow biopsy 12 years 8 months ago #2051

  • ddunn
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thank you. I am supposed to have one friday and want to know what to expect........and what information this gives them, and if it is necessary!!!

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Re:bone marrow biopsy 12 years 8 months ago #2095

  • julia
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I had one 3yr ago with a count of 10k. I was absolutley terrified and once the heama got the hint that i was not going to give up and have a bmb with just a local anasthetic, she made an appointment at another hospital. I was given a sedation injection into my arm and i was out for the count. I remember saying aaaaahhhhhhh! but i think thats when they done the asparation. I came home the same afternoon and had a big heamatoma bruise at the base of my spine and the hand print of the man who done the procedure.
Everything came back fine, they actually had a look when they took it and gave me the reasurance the same afternoon.
Lots of people here are braver than me and just had a local. Some even say it was nothing.
Good luck and if you feel you need something dont be afraid to tell them.
Julia

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Re:bone marrow biopsy 12 years 8 months ago #2101

  • server
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  • newcreationchangingdaily
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I had one. It wasn't as bad as I thought. I read up on it and was expecting unbelievable pain, but that just didn't happen. Mine was in my hip. The worst part for me was the first needle for the numbing. It hurt going in, but all shot hurt so it wasn't unexpected. After a couple of seconds it wasn't bad at all. Lots of poking and jabbing but not painful, just like he was pushing on me. They let my husband stay for the procedure, he had a worse time with it than I did! I kept asking him if he was ok!!! The nurse said I was the best patient they had ever seen. :) No pain after it either, not even that much of a bruise and my count at the time was 9.
All that to say....no worries, it's gonna be alright. Let us know how it goes for you.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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Re:bone marrow biopsy 12 years 8 months ago #2104

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I had one, but don't think it was necessary. According to ITP protocol, it is not necessary for diagnosis.

It took 20 minutes in the doctors office. First they numbed the skin, then they numbed the muscle. Two small needles for that, no worse than a shot. The actual aspiration felt like a jolt of lightning, but it was over before I could even say ouch. I left with a band-aid on my butt. I wouldn't say it was traumatic at all. I was more afraid of it than I should have been. You hear stories of people screaming...it wasn't that bad. If you've had a baby, this is nothing.

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Re:bone marrow biopsy 12 years 8 months ago #2106

  • server
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  • newcreationchangingdaily
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If you've had a baby, this is nothing.


:lol: :woohoo: :silly: And that's the truth!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

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Re:bone marrow biopsy 12 years 8 months ago #2260

  • HSheppard
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If you've had a baby... :laugh: Isn't if funny how you grade everyting on that scale once you've experienced it?

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