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what to eat ?? 12 years 5 months ago #5482

  • kantooh86
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i was daiagnosed with itp 7 years ago
i had 3 periods of steroids
now my platelets count less than 10k

i started my survey over the internet

what i have found till now is a list of food elimination

dont eat that & that

what i realy want to know is what to eat

if i went according to the list , i will have none to eat

would everyone see this tell me his list of food which he thinks it's healthy

thanks alot

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Re: what to eat ?? 12 years 5 months ago #5493

  • Ann
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I just eat a normal diet. I happen to be vegetarian and don't eat meat or fish but not because of ITP. I don't believe that any food or supplement affects my platelet count.

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Re:what to eat ?? 12 years 5 months ago #5497

  • julia
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Broccoli and spinach are good as they have vitamin k which helps your blood clot. Don't read too much into it, you wont enjoy day to day life if your drinking horrid health drinks etc. Im sitting here with a chicken, mushroom and garlic pizza mmmm
Julia

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Re:what to eat ?? 12 years 5 months ago #5515

  • kantooh86
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thanks to all who replied to the topic
i'm just going crazy
i found a list of blood thinners which contain all the food i thought was good
i have to give up all the food i guess

then i find myself saying what the hell , i will eat everything i'd love to eat but then i find my platelets counts very low

& the stress ... oh my god the worst ever

i find myself pushing my feet & squeezing it

i wish that i can find anything would help rather than food , like herbal supplements


p.s: i found a list of food that contain vitamin k but then i found the same kind of food contain vitamin E which i guess is one of the list of the warnings on pdsa site

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Re:what to eat ?? 12 years 5 months ago #5518

  • Ann
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The fact that your platelets are going very low is not as a result of what you are eating. Nobody, but nobody has come on here and said that a certain food makes their count go low. There are some foods that cause the platelets to be not so sticky as they might be but even then it is not worth bothering about.

There are a few drugs which can cause the count to go low but only in susceptible people and they will always find out because when the drug is stopped, the count returns to normal.

Try not to stress and just eat a normal diet, eating is a pleasure that we need and it keeps us happy which is very important with people with a chronic illness.

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Re:what to eat ?? 12 years 5 months ago #5526

  • NatalieM
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I'm with Ann. Don't read into it that much. No food is going to MAJORLY effect your platelet count. I even asked my hemo about it and she basically laughed at my question and told me to eat whatever I wanted. Also, stress can make it even worse! Calm down and go eat a burger! or chocolate cake! or whatever makes you happy! :0)
*Here's to high platelets!*

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Re:what to eat ?? 12 years 4 months ago #6192

  • aurehsalla
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Yep - I essentially eat what I want, although as I'm still trying to shift my last 8lbs of steroid weight, I'm trying to be healthy and not eat too many takeaways! I'd say keeping your protein high is probably good as it's responsible for generating megakarocytes which break down into thrombocytes.

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Re:what to eat ?? 11 years 11 months ago #10244

  • Lindy
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There is this list at pdsa website of food to avoid & some seem like really healthy food.
So it seems a bit confusing & scary. :unsure:

It would be great if anyone can share what type of food can we eat or should we eat?
Thanks.

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Re:what to eat ?? 11 years 11 months ago #10350

  • sally
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Auto-immune diseases are inflammatory by nature. Dr. Tanya Edwards at pdsa conference talked about the anti-inflammatory diet. Some of her advice varied a little bit from advice given on the websites I have read but the basic info is there - we all vary diets to suit our tastes/needs. :side:
You know the stuff- vegies, fish, nuts, seeds, whole grains etc. Eliminate processed foods, sugars, etc.
She also recommended adding tumeric due to it's anti-inflammatory qualities. She gave a nifty recipe to make it palatable and better absorbed. You get a teaspoon of tmeric. 1/2 teaspoon black pepper, and mix this well with a teaspoon of olive oil, then add V8 vegie juice to taste. I didn't think I'd like it but was pleasantly surprised.
Hope this helps. Sally

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