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Vitamin D levels in Autoimmune disorder 1 month 3 weeks ago #72548

  • Chad89
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  • Diagnosed with ITP in 2007 at age 18.
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So I came across quite a bit of new research suggesting that Vitamin D levels in patients with autoimmune disorders of any kind are usually low. If you get a chance to check out a few of the studies on Coimbra protocol and Vitamin D levels it’s quite interesting. Lots of videos by different doctors and double blind studies quite recently that show some good evidence. 

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Vitamin D levels in Autoimmune disorder 1 month 3 weeks ago #72549

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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My levels were very low. I have been  taking daily Vit D3 supplement  for last 8 years but nowhere near as high as  Coimbra protocol.
Uk guideline is a max of 4,000IU/day to reduce the risk of hypercalcaemia.  

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Vitamin D levels in Autoimmune disorder 1 month 3 weeks ago #72552

  • Chad89
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  • Diagnosed with ITP in 2007 at age 18.
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Vitamin D levels in Autoimmune disorder 1 month 3 weeks ago #72553

  • Chad89
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  • Diagnosed with ITP in 2007 at age 18.
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If you go through with Coimbra they monitor your levels and take care not to cause problems associated with hypercalcemia. There are a couple of YouTube links above and if you Google Coimbra protocol some other stuff will come up. One of the videos is the double blind study. 

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Vitamin D levels in Autoimmune disorder 1 month 2 weeks ago #72559

  • mrsb04
  • Away
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2021
  • Karma: 7
  • Thank you received: 575
Videos are interesting but I am sticking where I am for the time being:-
A] After waiting almost a year I have just started a clinical trial  www.clinicaltrials.gov/ct2/show/NCT03395210  and  have no wish to jeopardise it by changing current meds. 
B] I take 4800IU Vit D3 + 3000mg Calcium carbonate a day for my osteoporosis. I am not prepared to drop the dose of calcium as I normally run at a below normal level anyway. 

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Vitamin D levels in Autoimmune disorder 1 month 2 weeks ago #72562

  • MelA
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Mine were quite low and I was put on a very high dose of D3 one time a week for so many weeks - tested again and in normal range and now I take 2000 IU a day.   I haven't had a lot of sinus infections as in the past since my D level is normal now.    

Everyone, in my opinion, should have their D tested.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Vitamin D levels in Autoimmune disorder 1 month 2 weeks ago #72569

  • Chad89
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  • Diagnosed with ITP in 2007 at age 18.
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I have an appointment with one of the Coimbra protocol Dr’s at the end of the month. I’ll pass on any useful information I receive.
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