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John wrote: Erica,
What you and Tamar don't understand is the fundamental question: Why does an ITP patient progress through multiple treatments in the first place? Why are they increasingly not working. That is the entire point missed by the medical community and hemas that are treating with these hard drugs. If you keep throwing stuff at the wall, eventually something will stick, but only for a while. Great strategy and obviously does not work in the long run.
cheers,
john
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Joan Young | PDSA Founder
Joan Young was diagnosed with ITP in 1992. After failing all the usual medical treatments available at the time, including a splenectomy, and suffering from numerous side effects from the medications, both Joan and her doctors thought she might not live. Joan decided to try the alternative treatments and lifestyle changes she’d read about in the hopes of improving her health. Working with other healthcare professionals, Joan slowly recovered from her ITP. Joan had her life back. When Joan went into remission, she could have walked away and put her frightening ordeal with ITP behind her. But frustrated by the lack ofinformation and support available for others afflicted with this disease, Joan created the Web site www.itppeople.com . Soon, people from all over the world found the Web site, shared their trials and successes, and learned of many options that could help them heal. The response to the Web site prompted Joan to create the Platelet Disorder Support Association and www.pdsa.org . Since the PDSA was founded in 1998, Joan has worked tirelessly on behalf of those individuals and families affected by ITP. She has personally answered thousands of phone calls and emails from people desperate for information, all along offering them hope and inspiration. Joan collaborates with top hematologists, researchers, and pharmaceutical companies working diligently to find new treatments for ITP and, ultimately, a cure.
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John wrote: Thank you Tamar for your comments. I decided to take the high road and deleted my earlier comment to you. LOL
NB
Can't resist. In the spirit of the founder of this website, Joan is the one that inspired me at the very beginning in 2011.Joan Young | PDSA Founder
Joan Young was diagnosed with ITP in 1992. After failing all the usual medical treatments available at the time, including a splenectomy, and suffering from numerous side effects from the medications, both Joan and her doctors thought she might not live. Joan decided to try the alternative treatments and lifestyle changes she’d read about in the hopes of improving her health. Working with other healthcare professionals, Joan slowly recovered from her ITP. Joan had her life back. When Joan went into remission, she could have walked away and put her frightening ordeal with ITP behind her. But frustrated by the lack ofinformation and support available for others afflicted with this disease, Joan created the Web site www.itppeople.com . Soon, people from all over the world found the Web site, shared their trials and successes, and learned of many options that could help them heal. The response to the Web site prompted Joan to create the Platelet Disorder Support Association and www.pdsa.org . Since the PDSA was founded in 1998, Joan has worked tirelessly on behalf of those individuals and families affected by ITP. She has personally answered thousands of phone calls and emails from people desperate for information, all along offering them hope and inspiration. Joan collaborates with top hematologists, researchers, and pharmaceutical companies working diligently to find new treatments for ITP and, ultimately, a cure.
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While attending a lecture by a naturopath at my institution I had the opportunity to ask the following question: given the extreme scientific implausibility of homeopathy, and the overall negative clinical evidence, why do you continue to prescribe homeopathic remedies? The answer, as much as my question, exposed a core difference between scientific and sectarian health care providers. She said, “Because I have seen it work in my practice.”
There it is. She and many other practitioners of dubious modalities are compelled by anecdotal experience while I am not.
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If I wearing garlic necklaces and my platelet counts improved, I wouldn't assume the garlic necklaces caused my counts to improve. I would assume there were other reasons for the platelet count change. I tend to prefer research where n is greater than one.
Erica
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