Hi all, my son has very aggressive form of ITP. This wkend was in hospital with nose bleed for 1.5 hrs! I was terrified. His blood looked like red water. We have tried alot alot of stuf over the years. Even the IVIG was starting to not work anymore. He lost 9K plates over nite & was down to 6k. Then they found out that he actually has "Evans Syndrome", which also effects RBC. He started a new drug in hospital, Imuran, but was told about 2 weeks before it kicks in. He left the hospital at 11K, 40mg of predinsone daily. Thats actually low for him, as he has a weight issue he's battling too.
Anyway, I had been reading about a product called "Digestacure", which is supposed to help much with autoimmune. This is the website....
. So...he's been on it only 3 days, but went to doctors today (he came home Tuesday)...and his numbers went from tuesdays 11K to 56K today! Now for him thats a miracle! His numbers have never moved like that in years. Now i'm not saying for sure it was all, or any of the digestacure, cause he has only been on it 3 days, but besides for that & prayers to God, that is all that we have had on our side. I dont want to raise false hope, but I suggest looking into this product. God is a new subject for me, as I'm exploring & researching that too now. I will keep an update, best luck to all.
I have read the book that comes with the digestacure...the info inside is very interesting, & I would agree with almost all of it, for I have read over the years many times the same thing, from various sources. I do not think that digestacure can cure ITP directly, but it will help balance his immune system in the sense that as the book mentions, its difficult to get the micro nutrients in todays food, nutrients that are important to over all health, but even more important, because he is on a immune suppressant drug, I need the remainder of his immune system to function strongly.
Someone people may not agree, but let me tell you, last thanksgiving my son was on a different immune suppressant & he developed a bad virus, which we were never told what it was, but I think it was the BK virus because it causes the same symptoms that he had, which were horrible...he had bad pain during urination, but a bacterial infection of any kind was ruled out. We winded up going to the ER 5 times, but the 4th time he was urinating blood, & by the 5th time, pure blood came out, just thick blood. I thought I was going to loose him....they finally pulled him off the immune suppressant & let his body fight the virus, which lasted 4 more days with a 104 temp. The only good news was that for one week his plates shot to 268K...but it was because of the virus unfortunately.
Anyway....as of right now hes on the Imuran immune suppressant drug, which I hate, & im still searching for a way to get rid of this crazy demonic condition.
As far as the persons comment above about the steroids effecting his counts, yes they do, but we are very in tune with how they effect it cause he's been using them for so long, so any change in his numbers we can usually say its this or that as far as drugs go. What I actually think may have helped his numbers was that he was eating gluten free in the hospital & he was also eating healthy & dropping weight (he's also overweight which is another battle). After I read another article on allergies effecting auto immune conditions I want to go back to the gluten free and see what happens, but im going to keep him on the digestacure still to keep his body with a supply pyhto nutrients, especially with this crazy new respiratory virus going around. Thanks again all.
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