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TOPIC: Omega 3 & 6

Omega 3 & 6 5 years 7 months ago #42463

  • Katsim
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Hi all

I wasn't sure where to post this....

I want to take an omega 3 & 6 supplement for a different health condition I have. My count hovers around 50 without medication at the moment. Do you think it's safe to take??? I know it impacts on platelet aggregation, but at what count does this become a problem?

If it makes any difference I'm thinking of taking cold pressed flaxseed oil - not fish oil (yuk!! Don't like the thought of fish oil!)

Any thoughts?

Thanks, Kat :-)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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Omega 3 & 6 5 years 7 months ago #42474

  • poseymint
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Hi Kat-- I don't know at what count would pose a problem but will just share my experience.

A few years ago I was around 15K-20K platelet count with no bruises. I took some children's gummy Omega 3 vitamins- fairly low dosage. Not a good idea. After about 5 days of taking the Omega 3 my arms were covered with bruises. I realized my error and quit taking them. Within 24 hours the bruises began going away.

I eat salmon and it doesn't seem to bother me. But I now stay far away from Omega 3 or any fish, flax whatever vitamins.

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Omega 3 & 6 5 years 7 months ago #42479

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I'd think you'd be safe at 50k, but you could check with your doctor. You might end up with some symptoms like bruising, as Posey said.

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Omega 3 & 6 5 years 7 months ago #42487

  • Katsim
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Thanks ladies :-)

Posey - are bruises on your arms usually indicative of your count dropping? I took some flax seed this morning & I'm keeping an eye out for my "typical" symptoms which are bruises on my legs & small blood blisters in my mouth. We're yours different on omega 3?

Sandi - as always I'm very interested to hear what you think! I haven't contacted my haemo - he is great for my itp - truely marvellous!! However - we have several differences of opinion over my pcos. It's a long story & for another time!

I've given the flax seed a go this morning & so far so good (touch wood!)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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Omega 3 & 6 5 years 7 months ago #42491

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Kat - I'm not always right, so don't always assume that I am. Double checking is fine with me!

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Omega 3 & 6 5 years 7 months ago #42492

  • Katsim
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Sandi - I took the flax seed before I read your post. My decision :-) it's still good to know what you're thinking - your experience is invaluable!!

I won't be hunting you down if this supplement doesn't agree with me though ;-) lol
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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Omega 3 & 6 5 years 7 months ago #42493

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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:woohoo: LOL

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Omega 3 & 6 5 years 7 months ago #42528

  • poseymint
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hows it going Katsim? Any effects from flax?

In answer to your question-- the bruising from Omega 3 looked sort of normal ITP but there were a few more and came on a bit faster- like within 24hrs I was surprised to find lots of bruises. My counts didn't drop but I would guess it would be the equivalent of someone's counts dropping from 20K to 5K?

I mentioned that I occasionally eat a salmon steak which has approx 1200mg Omega 3. I've never had any symptoms from that. The vitamins were a lower dose than the salmon, only about 750mg. I think it might have been the cumulative effect of taking the vitamins for 5 days in a row that caused the bruising. good luck!

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Omega 3 & 6 5 years 7 months ago #42561

  • Katsim
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Hi posey

So far so good with the flax. They are 1000mg capsules and I have taken one each day for the last 4 days. So far no bruises or petechia. I visited a friends house yesterday & caught my finger in her weird bathroom lock - it really hurt!! But I've no bruise or mark from it this morning. So all in all I'm hoping that I'll be ok with the flax. It does only have 650mg of the precursor to omega 3 (our bodies have to convert the precursor to omega 3 - it's not a direct source) and I assume some will be lost in the process. So it's probably a lower dose than you were on overall. The pack says 1-3 capsules can be taken daily but I'm not going to push my luck!! Just happy to be getting some omega 3 in somehow!!

Kat :)
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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Omega 3 & 6 5 years 7 months ago #42563

  • FionaJ
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Hi Katsim
Do you think by eating or increasing eating fish could lower platlet counts. I am still trying to fathom out how the hell I dropped 126 in 2 weeks... I thought perhaps as I had eaten more fish lately. Dont know. Also been baking with flaxseeds in breads etc. here I an trying to be super healthy..... I didnt even know about Omega 3... And platelets?

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Omega 3 & 6 5 years 7 months ago #42566

  • Katsim
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Hi Fiona

In short - no I don't think eating fish caused your count to drop. Nor did the flaxseed.

I once dropped from 207 down to 60 in just a week. I've tried a gluten free diet, high protein, low protein, paleo and can honestly say that non helped. Some made my counts drop but in hindsight I think that was due to a low calorie intake overall. For me - diet has never had a measurable positive impact on platelets. Some people find it does & so I tried it too - but it seems that these people are in the minority.

Some food does affect platelet aggregation. So platelets are less sticky and don't clot as easily - fish oils fall into this category along with lots of other things (eg red wine, garlic, tomatoes.... check out the pdsa list of foods that affect aggregation but NOT numbers on this website). Obviously poor clotting AND low counts is a problem.

I asked about omega 3 because my counts are around 50 with minimal symptoms & I didn't want to get loads of symptoms like bruising because the omega 3 made my platelets less effective.

I really hope you find a treatment that works for you soon & you get some stability. Those up & down counts I remember only too well & they literally represent the roller coaster you're on :-/
Lowest count 1. Highest count 207 (ivig) Indium scan showed predominantly splenic destruction. No meds currently, just seeing how things go.

"Life isn't about waiting for the storm to pass - it's about learning to dance in the rain".

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Omega 3 & 6 5 years 7 months ago #42591

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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FionaJ wrote: I am still trying to fathom out how the hell I dropped 126 in 2 weeks... I thought perhaps as I had eaten more fish lately.


Fiona - that's just ITP. Counts usually drop that fast because treatments wear off; it isn't anything that you did. Sometimes the counts stick, sometimes they don't and there is no way to know what is going to happen. ITP is unpredictable.

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Omega 3 & 6 5 years 7 months ago #42604

  • John
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I am still trying to fathom out how the hell I dropped 126 in 2 weeks...


Try 250k to 5k inside 12 hours ...

That's right - its just ITP.

cheers,

john

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