- Posts: 2
- Thank you received: 0
!!! DISCUSSION GROUP RULES !!!
1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!
Macrobiotic diet
- Dmckillop
- Topic Author
- Offline
I'm desperate to get off the prednisone, which I've been on since February. Every time I get down to 5 mg, my counts plummet. My new doctor promises that he won't increase the dose but will instead go ivig. I guess I'm wondering if I should stick with the diet, or give it up. The doctor says it is probably not helping or hindering, but every time I stray from it my counts drop.
Thoughts?
- Danielle
Please Log in or Create an account to join the conversation.
- John
- Offline
- Posts: 148
- Thank you received: 32
I was in the same situation two years ago. I chronicled it here:
www.pdsa.org/forum-sp-534/8-natural-treatment-methods/16325-treating-itp-through-diet.html
I could not get off prednisone after my first platelet crash in April that year. Every time I tried to taper off and was near 5 mg, everything crashed. This happened four times that year. The first time I agreed to an ivig (my first and last), and after a 3 day stay and lots of vigilance by the nursing staff, I realized that there was too much risk with an ivig.
Instead of running to the hospital for each platelet crash, I simply by prednisone dose back up to 40 - 50 mg and waiting for the steriod to get the platelet levels back up. Although I hate the drug, I am grateful that I still have a response to it.
So my strategy was a severe diet (no gluten, no alcohol, no sugar, no caffeine, and no drugs - not that that was a problem for me) and heavy on greens and fruit, and light on meats and fats. The curious thing was that doing this improved my health and the way I felt while on prednisone (I was on the pred for 9 months that year). I found out I was gluten intolerant in doing this diet which was an important discovery. But in the end, while I think diet is REALLY important, that alone will probably not get you off prednisone entirely. In my case I tried Reiki and that seem to push me far enough that I could stop taking steroids.
If you haven't tried Reiki or Homeopathy, consider both. And find out if you are gluten intolerant. That will be important as well. But the short answer to your question is STICK WITH THE DIET! GL.
cheers,
john
Please Log in or Create an account to join the conversation.
While we were in London we met someone, he looked kind of yellow - found out he was on the macrobiotic diet.
Due to these two there's no way I would try it.
Please Log in or Create an account to join the conversation.
- Dmckillop
- Topic Author
- Offline
- Posts: 2
- Thank you received: 0
Please Log in or Create an account to join the conversation.
- eklein
- Offline
- Posts: 1353
- Thank you received: 167
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
Please Log in or Create an account to join the conversation.
Stay Informed
IMPORTANT!
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org
© Copyright 1997 - 2024, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.