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ITP - Alternatives 9 years 3 months ago #35954

  • jnaude
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My name is Louis. I am 39 years old, and was diagnosed with ITP in January 2007 and have just joined this forum.

I want to share my story with anyone so far as I'm seeking alternative treatment for ITP.

I have been on every single drug out there including nplate, which almost destroyed my life. The drug caused me to loose my sense of smell, severe sinuses and block nose for months. I have been off the nplate drug since March 2013 this year and my block nose are much better, still suffering from block ears all the time and still can't smell. I'm GLAD some people seem to have good luck with this drug but certainly not for others!

I'm based in the UK and most doctors over here are pretty useless. All they care about is steroids and other bad drugs. They should rather focus on the route of the cause than giving people bad drugs. I wonder how many doctors who have kids suffering from all these kind of conditions would rather seeking help naturally then pumping them full of steroids or advises having their spleen remove. I won't be surprise as I have seen it on anther forum, quite interesting when it's their own families or kids.

I believe our bodies should be able to heal naturally with the help of God but also appreciate it needed a little help at times i.e. supplementation.

I'm on a healthy raw veg diet, which make such a big difference in my life, great energy improvement among other advantages probably up by 60% if not more. My platelets still vary between 4000 and 30000.

I had my second bone marrow biopsy 2 weeks ago and waiting for my results. It's really scary as they are now checking for cancer in my bone marrow and if the test is negative then they want to perform a lymph node biopsy to look for lymphoma.

I'm still keen to go down the natural route and is very interested in Heather's story on this forum. She got in contact with a Naturopathic doctor in Houston, Tx who helped her cure her ITP naturally. I was determined to find alternative treatments rather than what the hematologist had planned. I was also desperate to keep my spleen!

So I would be really grateful if anyone has come across this lady in Houston, tx to provide me with her contact details. Basically she uses a forensic hair analysis to determine imbalances and overexposures.

Heather words were her approach to health is this: All disease is derived from an imbalance in the body. Fix the imbalance and your body will fix itself. More importantly, she believes that Jesus Christ is the true source of healing.

I would really be grateful if anyone can provide me with her details and god bless everyone on this forum who still suffers from ITP so everyone including kids can be healed and if it's naturally then even better

Kind Regards
Louis

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ITP - Alternatives 9 years 3 months ago #35956

  • jnaude
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My apologies - I have just joined and published my story below under the wrong section - how do I cahnge this to the correct section? :(

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ITP - Alternatives 9 years 3 months ago #36150

  • MDgal
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Hi Jnaude -
You should contact the lady that started the other thread - her username is hcpratt. She had provided me the Naturopaths contacts in Texas. I worked with her briefly but she was too busy to answer my questions or concerns so I stopped working with her. The vitamins however, got me a little better. I switched practioners and started working with someone else and got more vitamins after having my hair tested for mineral imbalances. My counts are doing much better now with no other treatment. My diet also had to change. I believe the ITP I'm going through was caused by a Yeast overgrowth which I have been dealing with for years. I am struggling to maintain a low carb, low sugar, high protein, high coooked veggie's diet and so far my health is improving. God is seeing me through all the way as I slowly walk towards healing. Good luck!!!!
"With man this is impossible, but not with God; all things are possible with God." - Matthew 19:26

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ITP - Alternatives 9 years 3 months ago #36177

  • John
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Hi Louis,

Have you read this article?

www.pdsa.org/forum-sp-534/8-natural-treatment-methods/26865-possible-underlying-factors-of-itp.html

It is an excellent start to seeking alternative treatments and avenues away from heavy drug regimes.

In a nutshell, I did a very strict diet two years ago and detoxed. This was in response to the biggest crisis I had faced since my splenectomy 20 years ago. I found out I was gluten intolerant (which was a big surprise!) and going gluten free improved my health and overall well being. I also had a yeast overgrowth problem (Candida Albicans) which is best treated with high potency probiotics and a low sugar diet. I recovered well from a major ITP relapse in 2011 (9 months on predinisone), and did very well until Christmas last year, relying on diet and Reiki therapy.

A colonoscopy and a bad flu virus set me back last winter, but I recovered once again, this time through homeopathy. April who posts here has been a great help.

Today I feel completely normal. My physical drive is back after a 2 year hiatus and I have no need for any drugs (for my ITP condition).

The bottom line is there are natural (drug free) ways to deal with your ITP symptoms. But you will have to perservere and likely find these solutions without a doctor or hematologist. GL.

cheers,

john

N.B. I will also link this thread as I stand by this thinking laid out by the article referenced.

www.pdsa.org/forum-sp-534/8-natural-treatment-methods/26927-allergies-that-cause-itp.html#29271

This is without a doubt in my mind how ITP buries us. We are overwhlemed by allergens and when it goes all wrong, our immune system is just raging and producing a staggering amount of platelet antibodies when our counts fall to < 5k. I've been there too many times now and I can see why in that situation the only thing that seems to work are the drugs. But there are ways out beyond the drugs. You just have to believe and go for it and find your way out because no one else will do this for you. NO ONE!! Try changing your diet, try going gluten free, try homeopathy ...

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ITP - Alternatives 9 years 3 months ago #36232

  • MDgal
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John -
Your story is sooo inspiring. Somedays I feel like giving up my natural methods but again they are the only thing that have gotten me better.

Managing the yeast overgrowth has been my biggest battle but I am fighting all the way. I struggle with staying away from bread but the low sugar part is easier for me. YES alternatives do work. I had come to a point where nothing was really working then April helped me get a little better but we never found my exact remedy so my body was getting just a partial response which was better than nothing. The hair mineral analysis vitamins are also really helping me. So I agree with you John 100% that the natural methods are the best way to get closer to treating the cause while the synthetic drugs just suppress the symptoms but cause more problems.

My biggest victory is living a life free of PREDNISONE :dry: . That thing is a beast. However anytime I get the flu or a stomach virus my platelets suffer but I am on the road to recovery. I just get so excited hearing other success stories.
"With man this is impossible, but not with God; all things are possible with God." - Matthew 19:26

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ITP - Alternatives 9 years 2 months ago #36278

  • John
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Hi MDgal,

The problem for most is that natural alternatives take time (many months), and depending on the route you take, it can take a long time (1 - 2 years). The diet I did initially was important for me as it provided necessary detoxing. But it only got me so far. What I think homeopathy did was reset my body and immune system. It is a crude way for me describe it as such, but that is how it feels.

I think homeopathy is amazing if the right remedies are found for you individually. April hit it square on for me in the spring. The biggest change I have noticed in the last two years are my energy levels and physical drive. I have hit the gym again and doing various activities comes with more ease. When my ITP blow ups occurred in 2011, I found most things a struggle physically after that. I think most ITPers experience the same thing. If you've had it bad, the energy levels (noticeable fatigue) and physical drive are nonexistant. When I interviewed with April this year, my biggest wish was to get back to my old self. That meant having the motivation and energy to get more physical once again.

If you are in the midst of a prolonged ITP crisis, think to yourself how you felt before things went bad. Think of times or moments when you felt good before you got into the ITP symptoms. Think about getting back to your old self.

I could have easily gone back to the hospital at least five times since the spring of 2011 to have an ivig administered to bring my platelets up (from <5k). I would probably no longer be on prednisone (as primary treatment), but likely have tried Rituxan in the care of the hematologist I'd seen in 2011. To be free of prednisone today and to avoid other heavy drug alternatives has been the goal and that won't change. GL.

cheers,

john

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ITP - Alternatives 9 years 2 months ago #36307

  • Melinda
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I just have to tell you that whenever I see this thread title I think to myself: there's an alternative to ITP??

If it's working more power to you [and I mean that]!

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ITP - Alternatives 9 years 2 months ago #36363

  • runnershirl
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Don't overlook the possibility of holistic energy healings such as Reiki. On the nights my daughter had Reiki, her platelets increased afterward,a dn when researching this site, I was then able to confirm that energy healings have raised platelet counts. Best wishes.

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ITP - Alternatives 9 years 2 months ago #36371

  • John
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I still have Reiki sessions once every two months. In 2011 it was one of the things that helped me. I also took a Reiki course in the spring to try to understand it better. Yes Reiki is "way out there" in terms of alternatives, but IMO it is one of the things to try to help manage our ITP condition.

cheers,

john
The following user(s) said Thank You: runnershirl

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