Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Chinese Medicine Shen Xue ling 9 years 3 months ago #35945

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
Hi
Did any one use Shen Xue ling for ITP.I want to ty it out as Rituxan didnt work for me.Doctor is advising to go for splenectomy or N plate which i dont want to. Any suggestions would help

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35947

  • Melinda
  • Melinda's Avatar
And what is Shen Xue ling?

I did find this but it makes no sense to me
www.ncbi.nlm.nih.gov/pubmed/2054887

No matter how I put it in nothing comes up on it.


When did you have Rituxan - what is your count?

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35948

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
This is a very cool find (both of you!)

Stem cells in marrow --> megakaryocyte progenitors --> megakaryocytes --> platelets

The article is stating that they cultured megakaryocte progenitors cells from various donors.
ITP donors' cells grew poorly. SXL added to cultured caused the cells to culture better.


The results suggested that SXL might inhibit the antiplatelet antibodies, facilitate reproduction, division and maturity of CFU-meg.

[CFU-meg are the megakarypcyte progenitors.]

In other words, this stuff helps grow platelets, perhaps by inhibiting antibodies, at least in a test tube.

Is this SXL stuff an herbal?

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35949

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
Can't find much, and translation into english is problematic.

There is or has been a clinical study published in Japan, but they want $15 to read the article.
sciencelinks.jp/j-east/article/200017/000020001700A0392417.php
Clinical study on idiopathic thrombocytopenic purpura treated with SHEN XUE LING.
Accession number;00A0392417
Title;Clinical study on idiopathic thrombocytopenic purpura treated with SHEN XUE LING.
Author; ZHOU Y (Shanghai Univ. Tcm, Shanghai) HUANG Z (Shanghai Univ. Tcm, Shanghai) XUE Z (Shanghai Univ. Tcm, Shanghai) YAO C (Shanghai Univ. Tcm, Shanghai) HUANG T (Shanghai Univ. Tcm, Shanghai) QIANG G (Shanghai Univ. Tcm, Shanghai)
Journal Title;Int J Hematol Suppl
Journal Code:L2555A
ISSN:0917-1258
VOL.71;NO.1;PAGE.266(2000)
Figure&Table&Reference;
Pub. Country;Japan
Language;English

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35960

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
This is chinese herbal therapy.They have scientifically proved the platelet count increase..They did a clinical trial and were successful. It is a combination of some saponins.The paper is free on the internet.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35961

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
After the Rituxan count did not increase.taking 40 mg of IVIG every two weeks.This is keeping count stable and out of danger.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35963

  • Melinda
  • Melinda's Avatar
The paper is free on the internet.
Do you have the url for the paper? I'm just curious - I have no problem with Chinese medicine as long as it won't lower my platelets :)

I'm not sure how IVIg works, but hadn't heard of it as 40mg. Do you get the infusions at a hospital? What is your platelet count?

Thanks Rob, I couldn't find anything on it except what I put above.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35964

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
Rob and everybody,
Sometimes your public library will be able to get you an article that you'd have to pay for, for free.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35965

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
kotasri9,

1) yes, please do you have a url? or can you cut and paste some of the text?

2) is the paper in english?

3) where do you get this stuff?

4) how is it used?

Thank you!

ps., could that be 40 mg dexamethasone?

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35966

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
Provide me your email addrees- I can send you the paper directly.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35967

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
It is IVIG only. IVIG is taken 1-2mg per kg body weight. So I am taking 40 mg of IVIG( less dose)

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35968

  • Melinda
  • Melinda's Avatar
Thank you but no thank you kotasri9 - I'd rather you post the URL here so I can go to it.

As Rob asked, how does one go about getting the Shen Xue ling?

Thanks!

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35969

  • kotasri9
  • Offline
  • Posts: 6
  • Thank you received: 0
I havent got it --but want to try out in chinese stores.For the URL I ll need some time may be tomorrow I will post it., as I dont have time to search .

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35970

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
Here it is in chinese:

申雪玲
and immune thrombocytopenic purpura is 免疫性血小板减少性紫癜

Google can search on chinese characters. Then use google translate to read article.
I still couldn't find anything useful.
That would have been awesome if it worked!

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35971

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
Wow Rob how did you do that?

I'm going to Hong Kong in a couple of weeks and could really use something that says 'No Onions Please' in Chinese.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35973

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
I did that just for you, Erica. I owed you for teaching me the expression google fu.

Go to translate.google.com/ and do from English to Chinese.

Then cut and paste the result.

没有洋葱,请 is no onions please. But for all I know it means extra ketchup.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35977

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
Rob do you know about google whacking?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35978

  • Rob16
  • Offline
  • Posts: 1125
  • Karma: 2
  • Thank you received: 275
I didn't know googlewhacking by that name, but of course now I do!

If thrombocytopenic aardvark gets 12,700 hits, I think the game is hopelessly difficult.

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35982

  • jeffrey71
  • Offline
  • Posts: 555
  • Thank you received: 84
Use the word "bu" then onion, they will get it! Bu means no in Mandarin.

Ni hau (nee how) hello

Zia Jin means good bye or see you later

Chinese people are Mae gouren

I used to speak Mandarin! It was a long time ago

Jeffrey

Please Log in or Create an account to join the conversation.

Chinese Medicine Shen Xue ling 9 years 3 months ago #35983

  • CindyAnn
  • Offline
  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
  • Posts: 227
  • Thank you received: 39
Jeffrey,

Is there anything you haven't done - if so I am sure the list is short. It is very enjoyable to read of your adventures - some of us have to live thru others you know ;)

Cindy Ann

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo