Just a quick note to update the board as I now consider myself ITP disorder free.
I developed ITP 2.5 years ago. After extensive testing, no reason was found. My platelets were consistently between 20,000 and 30,000. I was okay at when at 30,000 but felt very tired and unwell when below 25,000.
After researching on the internet and PDSA board, I found information on H. Phylori bacteria as a possible cause. I got tested and found that I was positive. I requested antibiotic treatment. While I thought the treatment had helped, I still had low ITP numbers and wasn't sure I had gotten rid of H. Pylori or whatever other microcrobes were out of balance in my gut. I read about mastic gum, which has no real side effects, and went on it for 2 months. The results were amazing. After three months my platelets were way up. After 6 months my platelets were in the normal range. One year later my platelets are 245,000, which is around the level they always were for me before I got ITP.
I encouraged several members of my family to go on mastic gum for a couple of months. They too had tested positive for H. pylori bacteria. Everyone did well. My stepson, 20, whose breath was terrible, had a complete reversal of that condition.
Can't say enough about this alternative approach, whose use for stomach ailments dates back to the greeks.
I have to tell you that a month ago I had a recurrence of ITP. I thought H. Pylori was back but the breath test came back negative. I am still thinking to go on Mastic gum again though in case it is another stomach organism that is causing the ITP. And from my perspective being clear of it for a couple of years was a blessing.
I can't remember what I took last time. I think I was on 2 to 4 pills per day for 2 or 3 months. I think you shouldn't be on it longer than 3 months (yikes or may that was weeks - I can't remember).
I noticed this protocal (below) and am thinking to go on it.
Mastic Gum Extract, 500 mg. capsules,
Week 1: take 2 in the morning on an empty stomach at least one hour before breakfast for one week.
Week 2: Up the dosage to 4 per day, adding 2 in the afternoon on an empty stomach.
Week 3: Up the dosage to 6 for a total of 6 grams per day, adding 2 in the evening on an empty stomach (2 hrs. after dinner, one hour before bed.)
I'll try this out as well, I had H Pylori in March 2011 - and found out my platelets were slightly decreasing but was told that it could be a "normal" decrease. Anyways, I managed to kill it with some antibiotics as told by the doctor and then had a recheck in oct 2012 and results were negative. I still to this day believe I have something in my stomach because just hovering my hand over my stomach, I feel this burning sensation. I'll see how it goes with it
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