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Recover from chronic ITP in just 3 months! 10 years 10 months ago #21180

  • share.care.cure
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Who am I and why am I writing?
I am a 26 years old girl living in Indonesia who was diagnosed with chronic ITP.
I was admitted to the hospital with a platelet count of 2000; since then I was treated with high dosage of steroids due to unstable platelet counts for a period of time and was soon recommended to have a splenectomy by the doctor. But in just three months, I recover completely. I am now healthy with a stable platelet count of between 250.000-350.000 without taking any medications (steroids) or having to do splenectomy. So I purely just would like to share what I did and hoping it works for the others too.

What I did and what you can do:
1. Have a very strong will to recover and be discipline!
The first step is to keep a healing journal. And then write down a target and the plan to achieve it. (For me, I wrote down that I am going to be off steroids within 3 months. I wrote down the checklist that I have to do everyday, took the action and wrote down the progress).
2. First thing in the morning, I spent a little time to do a self-healing affirmation and creating a mental picture in my mind that I am well, healthy and that my platelet is normal.
3. Food intake:
- Plenty of fresh organic vegetable juice
- Be a vegetarian: replace meat with soya
- Drink lemon juice
- Eat seaweed
- Drink plenty of water
- Those are my top 5, but for more details, search under macrobiotics and alkaline diet
4. Exercise everyday!
(Light exercise like 30-60 minutes of jogging, swimming and dancing is recommended. Martial arts and diving are temporarily not recommended during recovery).
When we are taking steroids, we need to get rid of the toxic by releasing it naturally through urine and sweat, therefore drink and sweat plenty is good.
5. Pranic healing everyday.
Pranic healing is a form of energy healing. (You can google it for more info). I asked a pranic healer to do a pranic healing on me everyday. (They had a written protocol for ITP). Other than that, I did a meditation taught by Pranic healing called twin hearts meditation. It helps me to maintain a positive mental and emotional state.

Thank you for reading this through. Please give it a try; I really hope it works for the many!
Keep the spirit alive and get well :)

With a lot of love,
Jo
The following user(s) said Thank You: gkilianek, plustig

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21226

  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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How long now have you had normal and stable counts?

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21277

  • John
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hi Jo,

Congratulations and well done. There are not enough ITP success stories like this that are posted and it is encouraging to hear about your experience.

I faced a similar situation last year, and although we went about it in different ways, the essence of what we did to calm down our immune systems was done in the same way: A combination of a healthy diet and a healing energy (in my case I used Reiki and still do). I think if I had started the Reiki therapy sooner last year, I would have had much quicker results. I was on prednisone for 9 months before I finally tapered off for good. Hopefully things will stay the course now.

Good luck!

cheers,

john

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21340

  • share.care.cure
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Hi Karen,

It has a been about a month now that I am having a normal and stable platelet without any steroids.
I am still continuing with the healthy diet, exercise, meditation and pranic healing.
Let's pray that the recovery from this natural treatment is permanent.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21341

  • share.care.cure
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Hi John,

Thank you for the message:)
I am so glad to hear that you are getting better.
It's always so good to hear a success story. Well done to you too!
Let's continue with the diet & energy healing. Stay healthy!

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21342

  • share.care.cure
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Anyway, does anyone know what causes ITP to occur at the first place?
Does it come from virus? or due to bad eating habits/ stress?

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21353

  • DeeDee Marie
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Hi Jo,

Your story is really inspirational. It's so good to hear when someone as young as you are is doing well. I really agree with the eating healthy, praying/mediating, and the exercise. I really think that exercise is important--as long as you don't overdue it. When I first came down with ITP in 2006, I was running on a threadmil 6 days a week--and I think that it was just too much for me (I was 57 years at the time). I now try to limit my strenuous exercise to 3 days a week and I do pilates a couple of days using a DVD at home.

I also think for me that one of the medication I was taking (Sinequan) was also contributing to my low platelets (1-4000). Once I stopped this medication (in 2010), I did start to get better. And, I will also add that stress seems to bring on an attack (my doctor also believes that stress makes it worse or brings it on).

Thanks again for sharing your success and wish you good luck.
Dee Dee

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21375

  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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Jo, Many of us suspect a certain cause of our own ITP, but the disorder is called Idiopathic because there is no verifiable cause--at least in general. For me, I suspect use of NSAIDs triggered the onset of ITP. Obviously, this isn't the case for most ITPers and certainly not the case for the enormous number of folks who use the same NSAIDs I used.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21379

  • Ann
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Dare I say, maybe your high count is from the steroids rather than the healthy living and pranic healing. I hope it continues whatever the reason.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21398

  • DeeDee Marie
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I agree with Karen. I think for each person, it can be a different cause; just depends on each person's situation and general health.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21574

  • John
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For those that do not understand what is being said here, let me say this. Jo recovered from her ITP symptoms through natural means. This was through a combination of diet and a healing method. I have experienced this myself and I know this can be done.

You need persistence to find a healthier lifestyle. You need motivation to stick to a better diet. You need belief that there is a better way than the drug alternatives out there.

After 20 years with ITP, I get this. I wish I had this knowledge back when all this started.
The following user(s) said Thank You: DanielaG

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21589

  • DeeDee Marie
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John, That's great that you are doing so well. I believe in good diet and healing power, too. It's just that sometimes it's hard to stick with everything at once. I do know of another person who has had ITP for over 30 years and he, also, is doing very well. He's never had a relapse after his initial ITP (which, I'll have to say was very severe and lasted for about 8 weeks). But, he, too, does watch his diet, he exercises, and rests.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21590

  • Dean
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Why is it so difficult to stick to a healthy diet and regular excercise? I know I need to be better at both, especially the healthy diet!!

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21592

  • debrasla
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my son started using over the counter supplements and we think that caused his bruising which led to finding he has ITP. The doctors feel the supplements did not cause it, however he was fine before that

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21593

  • DeeDee Marie
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I can do the exercise--it's the healthly diet (never being naughty) that's hard for me. I do eat fairly well--but I like to enjoy certain foods at times (like mexican food and chips once in a while). I also like to have chocolate once in a while. I find if I deprive myself to limit it completely--then in the future I will probably over-indulge myself. I think if you really "love" certain foods, you should have them once in a while--that's just my philosophy. We need to have some enjoyment in life!!

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21594

  • eklein
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DeeDee, have you tried microwaving corn tortillas to get your chip fix? They will get crisp and no added oil. I eat chips sometimes but other times there do just fine.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21595

  • DeeDee Marie
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What kind of supplements was he using? I have heard that some supplements can bring on the ITP; just like the quinine water. I'm real careful about supplements for myself. Just take a Women's One a Day--that's it. We're all different and some of us don't do well with supplements. I've always been allergic to certain vitamins and supplements. I get some kind of reaction or rash.

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21597

  • DeeDee Marie
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Erica, I am going to try that. Do you cut them up first and then microwave them? That would be a good alternative to chips at the restaruant. Thanks for the tip!

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21601

  • Dean
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Same here DeeDee. I can do the excersis. It is the diet that is difficult. The foods that taste so good are not necessarily good for you!! The foods that do not taste so good are good for you! Should be the oppisite!

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21603

  • eklein
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I don't cut them up first, I put two tortillas in the microwave, it takes about two minutes. You need to find out the timing for your oven - watch them because they will burn. You want them crisped up and maybe slightly brown but they go quickly from brown to burned. Take them out right away or they might stick. Then after you take them out and they cool off they get a little crisper.

I'm sure you could cut them into triangles first - would probably crisp up faster.

This is super easy and has saved us zillions of calories. Salsa is very good for you too!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
The following user(s) said Thank You: DeeDee Marie

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Re: Recover from chronic ITP in just 3 months! 10 years 10 months ago #21605

  • DeeDee Marie
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Thank you, Erica, I am going to try them soon. Sometimes, you just don't want to admit how many calories those chips and salsa have! I will try this recipe soon! Sounds really good.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22094

  • Lady Elly
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Share.care.cure
My I.T.P. was absolutely caused by taking a Shingles Vaccine.
I had a physical 2 weeks prior to the vaccine. Immediately after vaccine, I started having lots of brusing and platelets dropped from 209,000 to 6,000.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22109

  • DeeDee Marie
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Lady Elly,
Did your platelets start going back up after the vaccine? I had 3 vaccines about 1 1/2 years ago and my platelets immediately started going down. But,they did come back up a few days later. I was still on Decadron treatment at the time--so they might not have gone back up on their own.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22412

  • Lady Elly
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DeeDee Marie:
I had 3 vaccines. Oct 2009, flu vaccine, Jan 2010, H1N1 vaccine, Apr 2010, Shingles vaccine. It was within weeks after the shingles vaccine (live virus) my platelets dropped from 209,000 to 6,000.
My platelets went up on predisone to 50,000 but but I could not tolorate the high doses of predisone. I had 16 IVIG's and they would go up, but dropped within 4 or 5 weeks to 10.
Have 4 treatments of retuxin, dropped to 20 immediately.
My platelets have been below 10,000 for the past 3 months as I don't know what to take that would help. I have not tried decadron.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22425

  • DeeDee Marie
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Lady Elly, do you happen to be taking any other medications at the present? Sometimes other medications can keep our platelets low. How do you feel with your platelets this low? I was just asking because sometimes they can be low, and as long as we don't have any signs of bleeding, we can get by.

There are other treatments you could try and if you want to give it a try; like Nplate and Pronacta (not sure of the spelling). I, myself, will not take any vaccines because of what happened to you. The last time I had three vaccines, my platelets immediately fell--but they went back up very slowly.

Don't give up hope; sometimes there is something we are doing or taking (or stressed) that keeps our platelets low. Try to keep youself healthly in the meantime.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22442

  • thuathien
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Hi Jo,
Do you drink lemon juice with sugar? Sugar is not good for ITP people what I read in this forum. Maybe the body of each person is different.

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Re: Recover from chronic ITP in just 3 months! 10 years 9 months ago #22443

  • DeeDee Marie
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We all know sugar is bad for us, but I personally believe my body doesn't like any artificial sweetners. I was using some everyday the last time my platelets fell. Now, I don't use any and I don't drink any diet drinks.

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Re: Recover from chronic ITP in just 3 months! 10 years 8 months ago #23212

  • John
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On the topic of sugar, I am still trying to stay relatively sugar free. And I use relatively because so many food products contain some level of sugar.

I continue with my diet that I have been posting about since May 2011. The reason I still try to stay away from sugar (no sweets, or deserts at all!) is because I do have a yeast (albicans) problem that I try to keep in check. And from what I learned last year, a yeast infection can fool the immune system and cause additional problems for those with ITP.

This is my own experience and why I assume sugar consumption can arise as an issue.

The interesting thing is once you get yourself off sugar, you find the taste of it far to sweet. I also have not consumed soft drinks or diet drinks for the last 10 months. I was a big diet coke drinker and I am no longer.

I am a big believer in homeopathy for ITP. I never would have thought that it could have such a big influence, but the last year has convinced me in a big way. Although I use Reiki, it is still an energy method that has had a big impact on my ITP.

cheers,

john

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Re: Recover from chronic ITP in just 3 months! 10 years 8 months ago #23216

  • Ann
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Interesting what you say about sugar tasting too sweet. I found the same with salt after I stopped using it. Most bought meals and things taste far too salty now. You really do just get used to it. I can't stop the sugar though as I like chocolate too much.

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Recover from chronic ITP in just 3 months! 9 years 10 months ago #30401

  • plustig
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Jo,

Thanks for your share.

I was diagnosed on 12/28/2012 and my platelets haven't been over 12 since. I am in the process of tapering off Prednisone and have decided to deal with ITP naturally.

I am waiting on a Homeopathic remedy, meditating twice daily, eating as you have described, and doing work with a medical intuitive.

I appreciate your story of success!

Light and Love,
Patti

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