Welcome, Guest
Username: Password: Remember me

TOPIC: PaPaya LEAF EXTRACT as a Treatment for ITP!

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20019

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
How much water or juice do you put the 2 tablespoons of papaya leaf extract in?

Thank you!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20040

  • robfoss
  • Offline
  • Posts: 26
  • Thank you received: 15
I take it full strength and do not eat or drink for 30 minutes Take on empty stomach!
The following user(s) said Thank You: Lady Elly

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20049

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
I will try it without water. That should give better results. I had IVIG Nov. 22. I will have platelets checked 12/14. Will find out if they are doing better than usual after 3 weeks.

Thank you for your reply.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20316

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
Robfoss:

Are you taking 2 TBSP of liquid extract in addition to 2 pills? Recently, you mentioned taking 2 pills.

I've taken 4 oz. bottle of liquid extract in 10 days. Started on the 2nd - 4 oz. bottle today.

Dec. 14th, will have platelets checked. Pray liquid extract works and increases platelet count.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20321

  • robfoss
  • Offline
  • Posts: 26
  • Thank you received: 15
Hello,I take the pills for awhile then the extract for awhile. Till your levels increase I would take both.It can't hurt.I hope so much this will begin to increase your platelets.A nurse told me about the papaya.Taking the pills or extract is better than the IVIG! I'm praying for you!
The following user(s) said Thank You: Lady Elly

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20323

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
Robfoss:
In past 1.5 year, I've had IVIG approx 20 times. It's terrible.
Do you order pills from Amazon? I ordered 16 oz last evening from Iowa Select, but did not see pills.
Thank you for your reply and prayer.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20325

  • Dimples
  • Offline
  • Posts: 4
  • Thank you received: 1
I get the organic papaya leaf extract online from herbalpapaya.com
I take the pills along with the tea. It has worked wonders for me. Also thinking of trying their 16oz liquid extract. Any comments about the taste?
I will be Praying for you!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20326

  • Melinda
  • Melinda's Avatar
Hi Dimples - if I try to go to the site you have mentioned in your two posts I get the message: "There has been an error processing your request Exception printing is disabled by default for security reasons." Wanted to read about the organic papaya leaf extract.

Do you have ITP - or are you the friend/relative of someone who has it as you have put in your profile?

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20331

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
Do you have I.T.P.? If so, what were your platelet count when started and what are counts after using pills and tea? Also, how many pills and tea per day?
The taste is a little bitter, but worth it if platelets increase and hold.
Thanks for your prayers.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20346

  • angeleyes_
  • Offline
  • Posts: 3
  • Thank you received: 0
I have just ordered this from amazon, I am hoping it works for me too as I am sick of them using me like a pin cushion!!
Was at hospital today - count still 16
x

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20371

  • robfoss
  • Offline
  • Posts: 26
  • Thank you received: 15
I don't think Iowa Select has the pills the extract is good 2 Tablespoons a day in am on empty stomach for 30 minutes.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20372

  • robfoss
  • Offline
  • Posts: 26
  • Thank you received: 15
It taste strong and bitter but it is better than any IVIG I've ever had!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20430

  • cpo5
  • Offline
  • Posts: 32
  • Thank you received: 0
How long do your counts stay up for? Do you have to continue taking it to keep your counts up?

Glad to hear your counts have been improving since starting the extract. We ordered some from amazon for my son and are anxious to see results.
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20437

  • robfoss
  • Offline
  • Posts: 26
  • Thank you received: 15
I continue to take the pills or extract everyday.My level has stabilized at 110-120. I have never stopped taking it once my level started to increase.I'm scared to stop now.It's cheaper than IVIG! Goodluck and prayers it will work for you!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20439

  • cpo5
  • Offline
  • Posts: 32
  • Thank you received: 0
Not only is it cheaper than IVIG, it definitely sounds like there are less side effects!

I guess all you can do is do a trial run to see if you have either enough in your system or it helped your platelets permanently.

Thanks for your prayers! We are hoping for a miracle. :)
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20460

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
robfoss:
I've taken the Papaya Leaf Extract for past 17 days. It's been 3 weeks since I had the IVIG. My platelets were checked today and they are below 10. I was shocked as they have never been this low in 3 weeks after IVIG.
May have platelets checked tomorrow as I can't believe they would drop that low after taking the Papaya Leaf Extract. Either the reading is wrong or the Papaya Leaf Extract is not working. However, I plan to continue taking it.
Thanks again for your prayers!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20461

  • Melinda
  • Melinda's Avatar
...as I can't believe they would drop that low after taking the Papaya Leaf Extract

I'm curious as to why you can't believe that?? Just because one takes something that is supposed to increase platelets doesn't mean it will!

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20465

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
Yes, don't we wish for treatments that were 100% effective. I don't think any of them are even 50% effective. Maybe prednisone.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20527

  • cpo5
  • Offline
  • Posts: 32
  • Thank you received: 0
Do you think you got a virus while taking the papaya that made your counts go down? I'm sorry - I am new to ITP. My son was diagnosed in October, I'm still learning all that I can. This site and forum have both been amazing.

I hope your counts go back up soon!
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20529

  • Ann
  • Offline
  • Posts: 1895
  • Thank you received: 355
My guess is that the IVIG is starting to work less well. That happens to a lot of people and is why many choose not to use it too often but to keep it for emergencies.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20530

  • ubly
  • Offline
  • Posts: 1
  • Thank you received: 0
GNC has a pill form of this but I think it is from the fruit. Is it different? Thanks

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20623

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
Ann,
What have you taken that are keeping your platelets up?

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20624

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
cpo5:

No, I did not get a virus. Not sure why they dropped so rapidly. The platelets dropped to 10 last week. Following day at 8.

Today, my platelets were 13. Will see next week how things go with platelets.

Still taking papaya leaf extract.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20625

  • cpo5
  • Offline
  • Posts: 32
  • Thank you received: 0
My son started the extract today. He told me that it "tastes like paint thinner"...ha ha.
How often do you get your counts checked?

I hope yours start going back up and staying up.
This is the stuff that drives me crazy
This is the stuff that's getting to me lately
In the middle of my littleness
I forget how big I am blessed
This is the stuff that gets under my skin
But I gotta trust You know exactly what you're doing
It might not be what I would choose
But this is the stuff...

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20626

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
cpo5:
I was getting them checked every other week. A few months back, started checking 3 week & 5th week. Every 4 to 5 weeks, I had an IVIG as they were below 10.

Last week was 3rd week after IVIG and they were 10. I did not want to have another IVIG after only 3 weeks. So waited for another week to be tested. Today they were 13. I was happy that they had gone up a little.

The extract does have a strong taste, but hopefully it will work for your son and others who try it.
The following user(s) said Thank You: Theresa

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20629

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
Lady Elly wrote this: <<<I've taken the Papaya Leaf Extract for past 17 days. It's been 3 weeks since I had the IVIG. My platelets were checked today and they are below 10. I was shocked as they have never been this low in 3 weeks after IVIG.>>>
Lady Elly, it seems your platelets took a dive when you started the papaya leaf extract and continue to stay down, lower than usual, as you continue to take papaya leaf extract. Do you think there might be a connection?
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20633

  • Ann
  • Offline
  • Posts: 1895
  • Thank you received: 355

Lady Elly wrote: Ann,
What have you taken that are keeping your platelets up?

Romiplostim (Nplate).

The UK ITP Support Association is funding a study looking into food intolerances and ITP. I am awaiting my results to see if I am judged to be intolerant of anything. If so, I shall follow a diet excluding the food and see what happens.

It's the first study of its kind and it should be interesting to see the results. It's a shame that there hasn't been any proper studies into the natural methods that people here try.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20638

  • Lady Elly
  • Offline
  • Posts: 122
  • Thank you received: 11
Erica:
What did you take to get your platelets up and holding?
You have an excellent point about the the connection.
Thanks.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20641

  • Melinda
  • Melinda's Avatar
Lady Elly do you keep track of your platelet count and what you are doing at the time of the count?

Meaning:
Date ---- Platelet Count ---- Treatment [such as dose of prednisone or Papaya or whatever]

I did that for years and that way I could see what was going on.

Please Log in or Create an account to join the conversation.

Re: PaPaya LEAF EXTRACT as a Treatment for ITP! 8 years 2 months ago #20642

  • eklein
  • Offline
  • Posts: 1353
  • Thank you received: 167
It was Rituxan that put me into remission. At the same time as my second Rituxan remission I also figured out a food intolerance I'd had for years and changed my diet (and my digestive system- yay!) radically so that might have helped too. I found out I had fructose malabsorption. Anyway, remission of several years and still counting.

Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo