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Celiacs Disease and ITP 11 years 11 months ago #10808

  • jesse14elroy
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  • Posts: 3
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Greetings and Merry Christmas to you all !; I posted here under jesse16elroy and lost my login with the new site and all. Just wanted to touch base as Jesse now 19 is still ITP free. He stays on a gluten free diet, watches sugar levels, takes immunocal and other suppliments like colostrum. Anybody done a Biofeedback scan ? Resolving has not been just a diet thing. Massive doses of probiotics, enzymes and raw foods. Just veggies and diet are not enough if you want to heal the gut. If you scan regularly you can monitor whats going on. Last check, 171. His low was 1. Many IVIG's . First contracted ITP at age 12. One year later it resolved. 2 years later it returned. There is hope just keep searching. There is an article by Dr. Koch on this site listed in the medical journal that links ITP to Celiacs.( funny our name is Koch too, smart guy haha), If you do this, it takes up to 3 months to clear your system of the gluten strains. It's very important that you TOTALLY go if you are going this route. One little cheat and you are right back to where you started.

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Re:Celiacs Disease and ITP 11 years 11 months ago #10868

  • sally
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Thanks for posting this. It's encouraging to hear positive outcomes and stories. Good luck to Jesse. I'm doing lots of similar things and am feeling a lot better for it and have more energy. My platelet levels are above the level where treatment is recommended and hopefully will stay there and get up into the normal range like Jesse's :)
Best wishes, Sally

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Re:Celiacs Disease and ITP 11 years 11 months ago #10879

  • jesse14elroy
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You are so welcome Sally. I thought it would encourage some people like yourself to keep on trying new healthy methods. We are convinced that gluten intolerance is the largest barrier for Jesse. He did have an infection when about 5 yrs old that the Dr's thought might be the flesh eating disease and they whacked him with the strongest antibiotics available so no doubt that wiped out all bowel flora etc. and probably led to this in the end but he has to keep lots of probiotics and enzymes going to keep his flora in check.
Have a great New Year !
Elroy

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