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Adults With ITP
Treatment - General
Promacta
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Promacta 13 years 4 months ago #69

  • MaryEllen
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Does anyone on this forum know anything about Promacta? Has anyone tried it? If so, what were the results?

Thank you. MaryEllen

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Re: Promacta 13 years 4 months ago #137

  • Crystal
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Hello MaryEllen....I been dealing with ITP for almost a year and my hemo have placed me on IVG, Pred, Rituxan, NPlate and now I am on Promacta. It has been working for me fine. However I am very fearful of its side effecs but I pray each time I take it. I have noticed my vision has changed and that is a side effect. But my count has remained over 160,000 and they also went up over 200,000. I been on Promacta for about three months.

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Re:Promacta 13 years 4 months ago #151

  • lucidawn
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My son was on it for a little while, but took himself off without telling us recently. He said it makes him feel terrible, tired, like he's on cold medicine. He has also been complaining about his vision...didn't realize that was a side effect.

He's 16.5, btw.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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Re:Promacta 13 years 3 months ago #682

  • FranL
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Short term I LOVE Promacta. Absolutely no side effects to speak of. NONE! Which is a big switch from the dex pulse I used to do. Long term I'm not sure it will work for me...my counts are up and down a bit. 82.000 two weeks ago and 40,000 now. But I'm cautiously optimistic.

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Re:Promacta 13 years 3 months ago #683

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Fran:

The drug is doing exactly what it is supposed to do. Counts do seem to bounce around for those who use Promacta.

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Adults With ITP
Treatment - General
Promacta

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