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Promacta

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16 years 1 week ago #69 by MaryEllen
Promacta was created by MaryEllen
Does anyone on this forum know anything about Promacta? Has anyone tried it? If so, what were the results?

Thank you. MaryEllen

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16 years 1 week ago #137 by Crystal
Replied by Crystal on topic Re: Promacta
Hello MaryEllen....I been dealing with ITP for almost a year and my hemo have placed me on IVG, Pred, Rituxan, NPlate and now I am on Promacta. It has been working for me fine. However I am very fearful of its side effecs but I pray each time I take it. I have noticed my vision has changed and that is a side effect. But my count has remained over 160,000 and they also went up over 200,000. I been on Promacta for about three months.

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16 years 1 week ago #151 by lucidawn
Replied by lucidawn on topic Re:Promacta
My son was on it for a little while, but took himself off without telling us recently. He said it makes him feel terrible, tired, like he's on cold medicine. He has also been complaining about his vision...didn't realize that was a side effect.

He's 16.5, btw.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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15 years 11 months ago #682 by FranL
Replied by FranL on topic Re:Promacta
Short term I LOVE Promacta. Absolutely no side effects to speak of. NONE! Which is a big switch from the dex pulse I used to do. Long term I'm not sure it will work for me...my counts are up and down a bit. 82.000 two weeks ago and 40,000 now. But I'm cautiously optimistic.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 11 months ago #683 by Sandi
Replied by Sandi on topic Re:Promacta
Fran:

The drug is doing exactly what it is supposed to do. Counts do seem to bounce around for those who use Promacta.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.