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What to expect 6 months 4 days ago #72779

  • Falcons1
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I was diagnosed with itp in 2013 count of 120.  My last count 11/29/22 was 76 my lowest.  What can i expect down the road, i am 72 years old and in good health other than itp.  No medications except for blood pressure pill once a day which is good.

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What to expect 6 months 2 days ago #72780

  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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I'm glad to say you're still in good health, despite an ITP diagnosis.  Your present count is enviable, and I'd be happy to have it if it meant I could forgo treatment.   I'm 72 and have been in the ITP boat for many years.  There is nothing about it that can be "expected", either now or down the road.  I haven't seen an identical case to mine in all the time I've been a member in this group, and no two others have been identical to each other, either.  There is no ideal guaranteed treatment for any given situation.  But I will say that you shouldn't even consider treating until your count gets to 30 or below.  That's an adequate count to handle most bleeding situations, for the exception of most surgeries.  Since the mortality rate for ITP is relatively low, and since the harsher treatments are responsible for at least half of those deaths, you shouldn't be in a big hurry to accept treatment if it isn't completely necessary.  

My advice is always that you should learn everything you're able to absorb about the disease and its treatments so that you're able to completely understand and approve of everything your doctor advises.  If you haven't yet, be sure to read all the information under the Patients & Caregivers tab on the home page.  Hope I've been helpful to you, at least a little.  


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