Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Would you get a 2nd opinion 2 months 1 week ago #72777

  • Hillary3
  • Offline
  • Posts: 5
  • Thank you received: 0
Hello! I had a baby girl on 6/12/22. Went in for a regular check up with my pcp in September and had low platelets and they have been dropping ever since. I had a normal pregnancy other than gestational diabetes. I was sent to a hematologist and started on 40 mg dexamethasone and have been tapering off that since 10/6/22. I tried prednisone but had a bad reaction to it-though after reading here I may have been just having a hard time coming down from the 40 mg of dex. But bc of that I have been tapering with dex and having a hard time sleeping, gaining a lot of weight and just been exhausted. My numbers have been dropping since the taper and we’re 53 today 11/28/22 and my hematologist wants me to start rituxan infusion on Wednesday. I am 30 years old- would you seek a 2nd opinion before starting the infusion? Or even after I start it? There is no one else local but I could drive 2-3 hours to either Atlanta or Nashville but I’m wondering if they would just tell me the same thing.  Below is my platelet count on different dates and the mg of dex I was on. Would love any feedback!


80 something 9/7.   55 9/12.    58 9/16.   59 9/19.    57 9/21.    45 9/26.  47 9/28.   20 10/6/22  -40 mg dex.   230 10/11- 8 mg dex.   179 10/18/22 4 mg dex.  124 10/24/22 4 mg dex.   166 10/31 2mg dex.  113 11/8 1mg dex.       75 11/15 1mg dex.    75 11/18 1mg dex.     81 11/22 1 mg dex.     53 11/28 .5 mg dex 

Please Log in or Create an account to join the conversation.

Would you get a 2nd opinion 2 months 1 week ago #72778

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
Personally I would get off dex and see what happens. Nowadays, unless the patient is symptomatic, treatment is usually withheld on a count above 30.
If it went below 30 I would go see a different haemo. 

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo