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Any experience about mirtazapine/Aripiprazole while on Nplate? 8 months 12 hours ago #71007

  • Lman
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Due to some problems, I visited a psychologist and offered me these two drugs. Just a quick look at their effect on blood, I found that they increase the risk for VTE which is already higher in Nplate consumers. What is your experience and what are possible side effects? And in general, what antidepressant drug is the safest in ITP world?
Thanks

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Any experience about mirtazapine/Aripiprazole while on Nplate? 8 months 56 minutes ago #71008

  • MelA
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I have no idea - would you take both those at the same time?

This is the site I go to when I want to look up a drug or supplement:
medlineplus.gov/druginformation.html

Do you have a hematologist? If so I would talk to him/her about the meds.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 4 weeks ago #71012

  • Lman
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It's a bit long. I had typed a big answer but accidentally refreshed the page and all gone.
The short story (as it might seem silly) is that my mom blames me that I haven't recovered from ITP because of the anxiety I'm dealing with. This anxiety mostly comes from the ITP itself and my academic life and plans for the future. She may not be totally wrong, as I agree that having ease of mind is good for anybody and as patients answered in a survey posted here, these approaches can also help with the count. She argues that all of those ITPers around us ( so far we have found 4 people with chronic itp who eventually recovered) who did not undergo splenectomy, recovered on the median time of 3 years ( and all were diagnosed not so far ago).
I think I'm going to refuse to take these two (I already have) because on the page you gave me about mirtazapine it said those on Warfarin should tell their doctors. Also, I know these drug classes interfere with sleeping and maybe have some other (probably minor) side effects. For me who wants to utilize 100% of his brain, these are nightmares. (The doctor who prescribed this was working in the psychosomatic field so it's related).
Ok. Back to the old question: How should I just reduce the possible anxiety coming from the itp and the future being not clear?
I believe ( to some degree ) that I might be anxious, mostly because of ITP and my academic life. What's the solution?
I should mention that I had booked a psychologist ( a non-aggressive one who was intended to have talking therapy) but she was in another city and the first session had to be physical ( not online ) and I couldn't attend that. So that was canceled. I think the next time I can book it will be 3 months later.
Any idea/experience is welcome.

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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 4 weeks ago #71015

  • mrsb04
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  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
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Lman
I seems to me, and please correct me if I am wrong, that you are in a situation where ITP (an autoimmune disease which is not you fault) appears to be ruling your life rather than you.
After my husband died 10 years ago I was struck down by PTSD a year later and spent 2 years in psychotherapy/talking therapy. It helped tremendously and I would thoroughly recommended it over medications any day.
One thing I learned and will carry with me forever was overthinking will not empower you over things that are beyond your control so stop worrying about them, park them aside and get on with you life.
This is exactly what I did regarding my ITP when diagnosed 2 months after my psychologist had discharged me!! It's here by no fault of mine, if it goes away it goes away and if it doesn't I'm stuck with it so although I am way out of my comfort zone I need to learn all I can about it and not let it take over.
Now it is just a part of me. I am an extremely clumsy person and if I bruise people may look oddly at me but I don't care. I'm blowed if I am going to wear trousers and long sleeves in the summer it's shorts and T shirt for me. If people find my appearance unacceptable that is their problem not mine.
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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 4 weeks ago #71016

  • momto3boys
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I just wanted to say hang in there! ITP is NOT your fault and your mother is wrong in making you feel that it's not gone because of something you are doing. I have had ITP just about my ENTIRE life. I got it when I was about 8 years old. They gave me a splenectomy shortly thereafter because they didn't have many treatments for it then. The splenectomy didn't work, and I've been dealing with it ever since (I'm now in my 40s!).

If ever there was someone who is sick of having ITP, it's surely someone like me! But it's not my fault that I have it. It doesn't mean that I'm making myself sick because I am not having enough "positive thinking." Throughout my entire life there have been times of great stress, times of great happiness, and everything in between. My ITP has outlived any kind of external influence from my mood or thinking or stress. It's just a broken immune system that is not my fault and it's not your fault either. You are young and have so much to look forward to. Don't let your mother or others around you bring you down because you have a disease. Definitely look into the therapy and try hard not to focus on ITP too much!
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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 3 weeks ago #71017

  • MelA
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Oh Lman I'm so sorry! Let me tell you - I have had bad anxiety twice, once in 1988/1989 thanks to a neighbor from hell and the other time when I thought I'd have to go back on prednisone in 2002, and neither time dropped my count just caused me to have shingles. I did nothing to cause my ITP back in 1989 - I did refuse a splenectomy because it is not a cure, the platelets are still coated with the antibodies that caused the spleen to destroy them only with the spleen gone other blood cleaning places in the body can take over that job.

Ever hear the saying "walk a mile in my shoes"? - that is what I thought when reading that your mom blames you for not recovering from ITP. You are doing all you can to keep a good count and live a good life - don't let anyone tell you differently,
don't listen to or give credit to those who tell you differently. Wish I could give you the secret on how to develop thick skin, not to care what others think but I can't & that didn't come to me until I was about 50.

If it is possible to re-book with that psychologist do it! And we are here, you can vent to us, just know that we understand.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 3 weeks ago #71018

  • poseymint
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As the others have said, anyone that blames you for having ITP is wrong. And to say that most everyone with ITP goes into remission in 3 years or less? That is just false. It sounds like you are managing your ITP really well. I don't hear you saying you are having bleeding events, hospitalizations, or symptoms that are disrupting your life. So if thats true- great job! You can be very proud of yourself for taking care of yourself, learning all about ITP, and finding Nplate/a drug that works. Also you have found this forum and are unafraid to ask questions and search for your answers. Good for you!

I'm no therapist but here's what I know of it- Anxiety is a sense of powerlessness, fearfulness, as if you are small and something out there is BIG and could overwhelm you. Instead of trying to stop the anxiety, another way to approach it is to ask- what would make you feel more powerful in every way, not just around ITP? What would empower you? How could you gain more confidence and feel stronger? First step I think is to know that you are strong! You are handling what life has thrown at you.
Just some ideas: I have seen people (and myself) get stronger emotionally when they stand up for themselves. Its okay to feel angry when someone is making you feel bad about having ITP!
Also people gain strength when they have support of someone who validates them like a therapist that you mentioned.
And another way that people grow in confidence is through accomplishments. It sounds like you have educational goals that you want to accomplish.
Another way to turn it around is with gratitude. I don't love having had ITP for the past 12 years but I am grateful for all the lovely people I have met, how much I have learned, and how I have grown from spending so much time at the cancer clinic. good luck and thanks for sharing!
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Any experience about mirtazapine/Aripiprazole while on Nplate? 7 months 3 weeks ago #71022

  • Lman
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Wow! This is what I like about this community. Whatever you ask, there are people out there to help you. Many thanks to you <3

Mrsb :
It is not ruling, but it has somewhat inserted uncertainty and frustration in your life. You know, there's always a chance of remission and a chance of becoming resistant to your current drug, and I think I'm too afraid of the surgery and have the phobia ( and some imagination) of lying on the surgery bed and waiting for the anesthetic drugs to take effect! This is not a major fear, but it exists.
About the fact that one should avoid mental drugs I 100% agree with you. Especially that now I'm thinking how one doctor would allow herself to prescribe these medications only based on a 30 min session with my mom and not me! And as you know, for people with such comorbidities like it, they should try drugs as the last resort. I will be looking to start talking therapy with a better doctor ASAP.

momto3boys
Thanks for your comment. Yes, you are definitely right. I always tell her that by blaming me you are getting things worse. But personally, I know at least she is kind-natured and wants his son to be healthy. Most of her comments are legit ( like doing exercise, not having stress, and chilling in nature). I know these are good but sometimes due to other pressure (like work), I might not be able to do these. I mean, after all, she is my mom and wants my good, but sometimes censuring me severely! I try to comply with her in doing things that are good for anybody, not only ITPers.

MelA.
Thanks for your positive comment! unfortunately, I'm the thin-skinned one! Maybe I was thick-skinned before 21 but after this, I feel more fragile to other people and I think maybe having low platelets makes us susceptible to these feelings. I always tell her not to blame me and she won't do good by doing so, but I also say I understand her concerns and try to live as a healthy life as possible. The Ironic part is that I had my last bleeding after a vacation ( with ease of mind and last count of 120k). So I told her if you think stress makes my count low, then why did that 10k happen after vacation? And by the way, my latest count was 30k (after recheck and 10k on first machine count). I'm glad that you saved your spleen and doing fine!

poseymint
Thanks for your kind comment! I know 3 years is not a mile stone, but among the 4 around us that we had talked to, they did so, but I know everyone's journey could be different and that what I told my mom. I know she really loves me and every time she gives such a comment, first of all, I notify her that probably itp ( and not recovering from it ) is not my fault and secondly I comply with her comments about taking more care of myself (sleeping earlier, working a bit less and going on a picnic and doing some light sport). But yeah I have big dreams for the future ;) they have kept me up and hopeful that one day everything will be alright and I'll be having much less stress!


Thanks for very instructive comments <3 I'm proud that I know you and there are people here to help very kindly.
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