Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Eltrombopag Update 1 month 2 weeks ago #70974

  • ImPatient
  • Offline
  • Posts: 114
  • Thank you received: 18
From today on only 1 x 25mg per week. Count yesterday was 153000. So glad, it's my birthday, and that is a great gift.

Please Log in or Create an account to join the conversation.

Eltrombopag Update 1 month 1 week ago #70985

  • mrsb04
  • Offline
  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
  • Posts: 1834
  • Karma: 7
  • Thank you received: 526
Happy birthday, great news about your count.
The following user(s) said Thank You: ImPatient

Please Log in or Create an account to join the conversation.

Eltrombopag Update 2 weeks 2 days ago #71136

  • ImPatient
  • Offline
  • Posts: 114
  • Thank you received: 18
Count the day before yesterday: 143000. First week in a half year or so that I don't have 3-4 days several hours of diarrhea. Hoping my count won't drop because my joints, spine, sternum still hurt a lot and make cracking noises with almost every move. I'd be worried if I had to increase the dose again. Continueing 1 x 25mg Promacta per week till the end of May, then new test.

Please Log in or Create an account to join the conversation.

Eltrombopag Update 2 weeks 2 days ago #71142

  • momto3boys
  • Offline
  • Posts: 479
  • Karma: 2
  • Thank you received: 127

ImPatient wrote: Count the day before yesterday: 143000. First week in a half year or so that I don't have 3-4 days several hours of diarrhea. Hoping my count won't drop because my joints, spine, sternum still hurt a lot and make cracking noises with almost every move. I'd be worried if I had to increase the dose again. Continueing 1 x 25mg Promacta per week till the end of May, then new test.

Not bad! Looks like you are having some good, consistent counts. Fabulous numbers to achieve with only one Promacta pill per week! You may be one of the lucky ones who can get all the way off the medication and maintain good counts. Fingers crossed!
The following user(s) said Thank You: ImPatient

Please Log in or Create an account to join the conversation.

Eltrombopag Update 2 weeks 8 hours ago #71158

  • ImPatient
  • Offline
  • Posts: 114
  • Thank you received: 18
Thanks momto3boys! They went higher up and more stable when I stopped eating vegan (was strictly vegan 17 years, and vegetarian before). Might be coincidence, but my hemostasiologist & pharmacists said there might be something to it. Hematologist doesn't have an opinion on it, no evidence. We'll see how it continues...

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

BBB Cleveland logo Charity NavigatorGuideStar Seal NORD Member Badge 2021THSNA logo