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NPLATE JOURNEY 10 months 6 days ago #70551

  • GrouchoMarx
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  • I would never recommend an illness that choses people like me.
  • Posts: 164
  • Thank you received: 15
Hello everyone,
I will start my experience with Nplate. I would like to share it for those that might need it.

I left Promacta/Revolade a month ago due to a lack of efficiency. For over 3 months my counts were around 25K on 75mg of Promacta.

However, I might still return to it. Why?

- Without Promacta my counts went down to 11K in 2 weeks. Obviously, 25K is better than 11K, Right?

- Since the approval of Nplate by the insurance took 6 weeks, and I was left with 28 days of Promacta medication at home. I decided to use it. And the surprise was, that my counts turned to 42K. Is it true also that I had 3 days of dex 6 weeks earlier when my level dropped to 11K.

- I read, that for some people, Promacta works with a small amount of pred. My doctor is open to consider 5mg of prednisone together with the 75mg of Promacta when the counts on Promacta fluctuate. I assume pred would be discontinued when we get closer to the target of 50k.

Being said so, I want to know what I can get from Nplate. It will help me decide what suits me better.

On 14th January I got my first injection with a dose of 80mcg when I was 30K.

On 21st January my level were 20K, so the injection that day had a dose increased to 160mcg.

Next Thursday I will know more.

The side effects so far, are almost none. Except for:

- a diarhea the day of the 2nd injection (with higher dose) but I am not sure what caused it.

- One kilo weight gain in 48 hours after the second injection. Something abnormal since I take care of my food and I actually run the day before (after a while). Will Nplate put weight on me? Let's see.

That's all for now

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NPLATE JOURNEY 9 months 4 weeks ago #70577

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 164
  • Thank you received: 15
On 28th January my levels were 24K.
So the increase of Nplate to 160 mcg did nothing.
As a result a new increase was prescribed. I got an injection of 240 mcg. I couldn't sleep, had insomnia, some agitation and stomach problems. Too much on that dose. I am not willing to go that far. One more shot of 240mcg next week is all I want to do to finalise this experience. No more.

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NPLATE JOURNEY 9 months 3 weeks ago #70600

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 164
  • Thank you received: 15
My Nplate journey ends today.
Another 24K today but with side effects. 1 kilo gain, insomnia and stomach problems.
Back to Revolade with 5mg Prednisone

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