Welcome, Guest
Username: Password: Remember me

TOPIC: PROMACTA TREATMENT 14TH OCTOBER

PROMACTA TREATMENT 14TH OCTOBER 1 month 3 weeks ago #68446

  • GrouchoMarx
  • Offline
  • Posts: 122
  • Thank you received: 12
Yes. I read this argument in this forum a lot. I assume counts over 50K basically means normal life.

Please Log in or Create an account to join the conversation.

PROMACTA TREATMENT 14TH OCTOBER 1 month 3 weeks ago #68448

  • mrsb04
  • Offline
  • Diagnosed in 2014. I'm a retired renal specialist nurse
  • Posts: 1414
  • Karma: 7
  • Thank you received: 350
Groucho
Your count is exactly where it should be.

Please Log in or Create an account to join the conversation.

PROMACTA TREATMENT 14TH OCTOBER 1 month 3 weeks ago #68449

  • MelA
  • Offline
  • Posts: 454
  • Karma: 2
  • Thank you received: 136
I don't know if it is an "argument" Groucho - it is just that a quick increase can be dangerous.
Platelets do clog blood vessels - and even with ITP after our names we can still have that happen to us.

To be honest with you I never stopped living my normal life after diagnosis.
Sounds like you are doing great!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

PROMACTA TREATMENT 14TH OCTOBER 1 month 3 weeks ago #68457

  • ecoclayton
  • Offline
  • Diagnosed with ITP 5/23/19
  • Posts: 43
  • Thank you received: 3
These numbers make me want to try Promacta. I will be returning to the Dr in a few days to check counts that were at 38 less than 2 weeks ago. If they are below 30, I am sure the Dr will want to try something. She even suggested looking at Doptelet last time.

Please Log in or Create an account to join the conversation.

PROMACTA TREATMENT 14TH OCTOBER 1 month 3 weeks ago #68459

  • GrouchoMarx
  • Offline
  • Posts: 122
  • Thank you received: 12
MEIA,
It seems the "normal life" depends a lot on the doctor you get and how much he or she scare you :) If I would have get someone saying:"You have a benign disease not much to worry about..." It would all have been different.

Ecoclayton,
It still too early for me to be completly optimistic but there is one strong point Promacta might have according to comments in this forum and is "stability". I dont need to have counts over 100, not even close to it if it has random deep drops time to time for unexpected reasons. I prefer to be steady over 50s. all year long. There is something a bit paraonic in ITP and is it due to to the uncertainity of the counts. It seems promacta keep you steady at certain level and you might end up just needing to test your blood 3 or 4 times a year. And during those months that you are not having tests your know that most probably the count is ok (except in my case if I catch a cold). Even when i had a cold my drop was over 30s what still isnt that bad.

Good luck and keep us posted

Please Log in or Create an account to join the conversation.

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo