Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC: I've been on all of it and nothing is working...

I've been on all of it and nothing is working... 2 months 2 weeks ago #66692

  • Itp.jordanfemale74
  • Offline
  • Posts: 1
  • Thank you received: 0
So in the last four years my itp has been very chronic, I've been on Prednisone,promecta, nplate,rituxin,am currently in the hospital for the fifth time in eight months receiving plateyand ivig meds so my question is , is their anyone experiencing this situation

Please Log in or Create an account to join the conversation.

I've been on all of it and nothing is working... 2 months 2 weeks ago #66694

  • MelA
  • Offline
  • Posts: 267
  • Karma: 1
  • Thank you received: 81
You were diagnosed 4 years ago? What have your counts been?
What was your count when you were sent to the hospital for platelets and IVIg?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

I've been on all of it and nothing is working... 2 months 1 week ago #66720

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
  • Posts: 1390
  • Karma: 10
  • Thank you received: 192
There is a percentage of ITP'ers that only respond to IVIG and high doses of Nplate. If this is your case, Fostamatinib (aka Tavalisse) is a new drug and might be a good candidate to try.

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo