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bleeding retinas

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5 years 7 months ago #64143 by freckles
bleeding retinas was created by freckles
hi,
i have not been on this site in maybe over a decade. since being diagnosed around 2005 with counts in the teens, i put my head in the sand, hoped that nothing bad happened and never treated . now they were always like 7, 9, or 11. so ironically, when my opthomologist saw some bleeding in my eye, my platelets are 32. anyhow, he catoragized it as moderate and is goiing to just watch with my next appointment sept 21. a lot depends on what he sees but now comes my question.

i'm going to jump around a little.....my treatments are limited because i have a fungal infection so i cant do immunosupressants. since i have been here last, how are spleen nplate and the pill form that begins w an e doing?
i'm a little afraid of the spleen, not for immune problems but for going to high and taking a stroke.
i should have said i'm diabetic, so high sugar is more of a problem, i would think, than platelets.

anyhow, if anyone has any experience aong these lines i'd love to hear about them.

thank you
freckles

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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5 years 7 months ago #64144 by Sandi
Replied by Sandi on topic bleeding retinas
Freckles, my old friend! I think of you often! Nice to hear from you.

Like you said, I'd wait and see if the eye clears up on its own by the next appointment before doing anything. Maybe try some Vitamin C; it can sometimes help a bit with bleeding symptoms. Is your vision okay? Promacta is the med that you were thinking of, I think. Many have had pretty good success with it.

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5 years 7 months ago #64146 by freckles
Replied by freckles on topic bleeding retinas
hi sandi,
nice to see you are still here. i just dropped out because i burned myself out thinking of platelets. and everyone i know was tired of hearing me talk about them.
i just got a new pcp who is going to send me to an infectious disease specialist. nothing to lose but a copay i guess.
i'll keep you posted.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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5 years 7 months ago #64156 by Sandi
Replied by Sandi on topic bleeding retinas
Well, I'm glad you're back. You'll be surprised to see how much my views have changed since we last spoke.

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