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Depression after Rituxin
- packh1@yahoo.com
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Last week I asked about side effects or virus and found out that it was side effects not a virus.Luckily most have subsided.
I am wondering if anyone had depression hit them hard after Riuxin .I had somewhat depressed having to do infusions after an 8 year break but not to this extent..
I can barely talk with people without ending up crying.This is not my normal temperament. I am a fairly positive person.
The fatigue is ongoing and wonder if that contributes.I did research and it doesn't list depression as a side effect. It seems odd that up until I got the infusion depression wasn't a big issue.
Thanks
tricia50
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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- packh1@yahoo.com
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tricia50
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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- packh1@yahoo.com
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When I had cancer 20 years ago, I attended a support group for exactly the same reasons.There are no in person support groups, with in a 60 miles of me, so this is perfect.
thanks.
tricia50
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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I had never come across ITP in all these years until I was diagnosed and was way out of my comfort zone.
This site was an absolute godsend. I learnt so much from fellow sufferers in the early days .
My haemo regularly says to me you've been on that website again haven't you. However she recently told me she is very proud of me and wants me to write a paper for the UK ITP Association about my self management.
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- momto3boys
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I'm so glad that you are here because your insights from within the medical/nursing community are invaluable.
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
- Posts: 2171
- Thank you received: 630
I'm still thinking about the paper. She said I had to be succinct. Not my strongest point I'm afraid. You ought to see me editing my posts repeatedly to make sure I'm not waffling. When I did my degree some of the assignments had a 2k (+/- 10%) word limit. They nearly drove me (and my late husband; bless him) crackers. Give me a 4k word limit any day.
If I do it I'll be putting it up on here for for comments before I submit it. I'm seeing haemo in a couple of weeks so will discuss it with her.
I have to say that when I attended the UK ITP conference last year I was absolutely staggered how many of the attendees just blindly did what doctors told them. Some of the questions people asked made my blood run cold at their ignorance. Many of them had ITP for a lot longer than me.
2 of the speakers Dr Nichola Cooper and Dr Marie Scully were advocates of empowered patients but I felt as if a lot of what they were saying fell on deaf ears. A lady sat close to me said to her neighbour it's up to the doctors too do this job not for patients to tell them what to do !!
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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We used to have a lot of people who would come here after splenectomy and be shocked that it didn't work. They were told that it was a cure. I don't see that much any more, thank goodness. There is no reason in this day and age to not be informed.
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- packh1@yahoo.com
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