Article re: pros and cons of treatments

Article re: pros and cons of treatments 10 years 3 weeks ago #32487

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	I came across this article today and have no idea how I missed it in my Bloodjournal updates. It's one of the most thorough treatment articles I've ever read, listing pros and cons of three common treatments. bloodjournal.hematologylibrary.org/content/120/5/960.full?sid=9e00c230-10f8-405a-964d-299484e271a0 The following user(s) said Thank You: Nomad, Dori, Fervenz, johnmerrick
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Article re: pros and cons of treatments 10 years 3 weeks ago #32493

CindyAnn Offline Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17 Posts: 227 Thank you received: 39	This article sure makes a good argument for delaying a splenectomy. It also points out the many choices we as "ITPers" have to make. Very good read!!! Cindy Ann
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Article re: pros and cons of treatments 10 years 2 weeks ago #32505

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	I think the article presents both sides well, but does give examples of when it is best to consider it and best not to.
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Article re: pros and cons of treatments 10 years 2 weeks ago #32514

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	Here's another good article that I just found: bloodjournal.hematologylibrary.org/content/118/16/4297.full?sid=6289f8c7-0a84-4a8d-93cb-7f281787cd36
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Article re: pros and cons of treatments 10 years 2 weeks ago #32523

Vdeutsch85 Offline Posts: 723 Thank you received: 121	Great article, one article says to wait 1-2 years before considering splenectomy and the other says 3
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Article re: pros and cons of treatments 10 years 2 weeks ago #32528

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	I looked to see the time difference between the two articles...only 8 months. Different authors too. Oh well, safe to say they advise to wait one to three years!
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Article re: pros and cons of treatments 10 years 2 weeks ago #32548

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	www.ncbi.nlm.nih.gov/pubmed/23637127
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Article re: pros and cons of treatments 10 years 2 weeks ago #32554

Vdeutsch85 Offline Posts: 723 Thank you received: 121	I think I will re-assess my situation in December....that will be the one year point for me. However, the more I read, the more against splenectomies I become.
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Article re: pros and cons of treatments 10 years 3 days ago #33247

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	Here is a new article re: Rituxan and Dexamethasone. This has been published before, but the more this combination is studied, the more credible it becomes. onlinelibrary.wiley.com/doi/10.1111/ejh.12102/abstract The following user(s) said Thank You: Dori
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Article re: pros and cons of treatments 10 years 3 days ago #33255

Vdeutsch85 Offline Posts: 723 Thank you received: 121	Thank you for sharing!
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Article re: pros and cons of treatments 8 years 2 months ago #47722

goaliegirl51 Offline Posts: 4 Thank you received: 0	I had a laproscopic splenectomy after having all possible treatments attempted. It worked great for about a month. Then my platelets plummeted again. I now have an n-plate injection every week.
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Article re: pros and cons of treatments 8 years 2 months ago #47723

EmilyK Offline Diagnosed jan 2015 at age 50 with 13,000 platelets. Posts: 454 Thank you received: 67	How is the NPlate working for you?
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Article re: pros and cons of treatments 8 years 2 months ago #47725

goaliegirl51
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Well it does the job. Generally you're supposed to keep the platelets between 50,000 and 150,000, but I'm so messed up I don't actually follow all of the FDA recommendations. In general though, I'd say it's painless. You have to stay on top of it. If you miss a dose, your count will plummet. My doctor advised me to use Nplate instead of the promacta pill because apparently the pill is a bigger pain and diet restrictions. Supposedly most people dislike the pill way more than Nplate.

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Article re: pros and cons of treatments 8 years 1 month ago #48147

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2372	Goalie: It's in your best interest to follow the Guidelines for N-Plate. Not doing so can be dangerous. Counts should actually be maintained around 50k and your doctor should be dosing you in that manner.
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Article re: pros and cons of treatments 8 years 1 month ago #48150

mrsb04 Offline ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use. Posts: 2115 Karma: 7 Thank you received: 608	Interesting reads thank you Sandi
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