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TOPIC: Article re: pros and cons of treatments

Article re: pros and cons of treatments 5 years 10 months ago #32487

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I came across this article today and have no idea how I missed it in my Bloodjournal updates. It's one of the most thorough treatment articles I've ever read, listing pros and cons of three common treatments.

bloodjournal.hematologylibrary.org/content/120/5/960.full?sid=9e00c230-10f8-405a-964d-299484e271a0
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Article re: pros and cons of treatments 5 years 10 months ago #32493

  • CindyAnn
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  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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This article sure makes a good argument for delaying a splenectomy. It also points out the many choices we as "ITPers" have to make.

Very good read!!!

Cindy Ann

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Article re: pros and cons of treatments 5 years 10 months ago #32505

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I think the article presents both sides well, but does give examples of when it is best to consider it and best not to.

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Article re: pros and cons of treatments 5 years 10 months ago #32514

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Article re: pros and cons of treatments 5 years 10 months ago #32523

  • Vdeutsch85
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Great article, one article says to wait 1-2 years before considering splenectomy and the other says 3

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Article re: pros and cons of treatments 5 years 10 months ago #32528

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I looked to see the time difference between the two articles...only 8 months. Different authors too. Oh well, safe to say they advise to wait one to three years!

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Article re: pros and cons of treatments 5 years 10 months ago #32548

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Article re: pros and cons of treatments 5 years 10 months ago #32554

  • Vdeutsch85
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I think I will re-assess my situation in December....that will be the one year point for me. However, the more I read, the more against splenectomies I become.

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Article re: pros and cons of treatments 5 years 9 months ago #33247

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Here is a new article re: Rituxan and Dexamethasone. This has been published before, but the more this combination is studied, the more credible it becomes.

onlinelibrary.wiley.com/doi/10.1111/ejh.12102/abstract
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Article re: pros and cons of treatments 5 years 9 months ago #33255

  • Vdeutsch85
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Thank you for sharing!

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Article re: pros and cons of treatments 3 years 11 months ago #47722

  • goaliegirl51
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I had a laproscopic splenectomy after having all possible treatments attempted. It worked great for about a month. Then my platelets plummeted again. I now have an n-plate injection every week.

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Article re: pros and cons of treatments 3 years 11 months ago #47723

  • EmilyK
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How is the NPlate working for you?
Diagnosed Jan 2015 at age 50 with 13,000.

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Article re: pros and cons of treatments 3 years 11 months ago #47725

  • goaliegirl51
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Well it does the job. Generally you're supposed to keep the platelets between 50,000 and 150,000, but I'm so messed up I don't actually follow all of the FDA recommendations. In general though, I'd say it's painless. You have to stay on top of it. If you miss a dose, your count will plummet. My doctor advised me to use Nplate instead of the promacta pill because apparently the pill is a bigger pain and diet restrictions. Supposedly most people dislike the pill way more than Nplate.

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Article re: pros and cons of treatments 3 years 11 months ago #48147

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Goalie:

It's in your best interest to follow the Guidelines for N-Plate. Not doing so can be dangerous. Counts should actually be maintained around 50k and your doctor should be dosing you in that manner.

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Article re: pros and cons of treatments 3 years 11 months ago #48150

  • mrsb04
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Interesting reads thank you Sandi

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