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Rituxan

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15 years 3 weeks ago #100 by Stangie11
Rituxan was created by Stangie11
Does anyone have feedback about trying Rituxan after a splenectomy, what effects it had on the body, and whether it was successful? Would a low dose prednisone be better? Does danazol work? Sorry for so many questions. :)

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15 years 2 weeks ago #462 by cheermom926
Replied by cheermom926 on topic Re:Rituxan
Hi Stangie.....I have had a spleenectomy and have used EVER treatment available excluding Whipro. Rituxan works best for me over the long term. Occasionally I need a boost with IVIG. For me there are not any side effects from Rituxan. I hate prednisone and danazol. They have major side effects for me. Hope this helps a little. :)

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15 years 2 weeks ago #470 by Stangie11
Replied by Stangie11 on topic Re:Rituxan
Thank you for your input. I have been debating for awhile now. Prednisone gives me the energy to function and keeps the platelets up and the short term side effects are ok. I know as I use them longer, that I will experience other side effects that I do not like. Did danazol work for you? How long does the rituxan keep your platelets up? Prednisone low dose keeps me above 100, so sometimes I feel that I shouldn't try rituxan yet. What do you think

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 2 weeks ago #481 by Sandi
Replied by Sandi on topic Re:Rituxan
Rituxan can be used after splenectomy, but does leave a person more immunosuppressed. It might work for you for a year, several years, or maybe not at all. Everyone is different.

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15 years 2 weeks ago #494 by cheermom926
Replied by cheermom926 on topic Re:Rituxan
As Sandi said everyone responds differently to Rituxan and really any treatment. Rituxan has left me in "remission" for over a year. It probably would have lasted longer had I not gotten a bad cold. Danazol and Dexadrone both work for me but I just can't stand taking them. Prednisone works well with IVIG but if I have to go on Prednisone I have to take anti-anxiety and med for stomach.
Hang in there you will find what works best for you with patience. Peace.

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  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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15 years 1 week ago #633 by karenr
Replied by karenr on topic Re:Rituxan
Neither splenectomy (January 2004) nor Rituxan (August 2004) worked for me, but I don't think the splenectomy made the Rituxan dose any more difficult. Prednisone (usually doses around 10 mg) worked for me both before and after the splenectomy--that is, prednisone keeps my platelets at a low, but safe (usually 25-40) level.

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