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ITP & Herpes
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ITP & Herpes 13 years 7 months ago #3498

  • SamIAm
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Am I the only one with both? In trying to find any possible underlying causes, my hematologist suggested that the HSV virus may be the culprit behind the thrombocytopenia. I don't know how I feel about that. In addition, the virus limits my options for treatment- steroids are out due to the possibility of causing a massive outbreak. And I can no longer take Valtrex because it causes thrombocytopenia. Arg!
The following user(s) said Thank You: joeywoey

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Re: ITP & Herpes 13 years 7 months ago #3500

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Well, any virus can trigger ITP, that part is true. Sadly, there isn't anything you can do about it.

I don't know that I'd write Valtrex off. Just because it can cause thrombocytopenia does not mean that it will make things worse for you. Antibiotics can do that also, as can any drug.

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Re: ITP & Herpes 12 years 3 months ago #17843

  • Moonchild_8
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SamIAm, you are not alone- though i hope you've found that out by now! I was just diagnosed with HSV2, and my counts definitely reflect it. It's nice to see i'm not the only soul dealing with HSV and ITP together, and i hope you've had successfull treament of both! My Nurse Practitioner put me on Valacyclovir [Valtrex], i haven't seen a problem yet! Might as well treat the HSV so that your counts stay up, right? :)
at any rate, good luck, and i hope things are going better for you!!
you gotta take the good with the bad, smile with the sad
love what you've got and remember what you had.
always forgive, but never forget
learn from your mistakes but never regret.
people change, things go wrong, but just remember:
life goes on!

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Re: ITP & Herpes 12 years 2 months ago #18151

  • Mjhatters
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My partner has been diagnosed with itp in 2010 and the HSv2 this Monday. She is going to see her doctor tomorrow as she is very week. I hope she is gonna be alright.

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ITP & Herpes 3 years 10 months ago #68412

  • joeywoey
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You just answered a few questions for me. I wondered whether there was a link between HSV2 and ITP. I was vaccinated for Hep b the same year through work and thought that was the cause of my ITP. And every time I'm prescribed prednisone I have a problems. You're not alone. It's a lot to digest right now but i'l come back to this thread again.
Take care, x

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ITP & Herpes 2 years 9 months ago #70741

  • barbk
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I'm not sure that the drug Valtrex is the problem, but rather the HSV virus itself. In my case, I had ITP for 7 years before I contacted HSV-1 and had an outbreak. I took Valtrex for 7 days (I think) to clear it up. My platelet count before HSV was stable at 50. After taking Valtrex it went up to 126!. Within 2 months, was back to 53. So in my situation, platelets did not drop from meds.

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ITP & Herpes 2 years 6 months ago #71190

  • Jhart17
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So do you think the HSV caused the ITP? I think that is what happened to my husband. His platelets improved after valacyclovir as well.

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Re: ITP & Herpes 2 years 6 months ago #71191

  • Jhart17
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I think my husband may have the same link with HSV and ITP. Do you think that is the cause of your ITp. Do you take valtrex every day now? When I discussed HSV and ITP link with his hematologist he blew it off.

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ITP & Herpes 2 years 6 months ago #71192

  • Jhart17
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Thank you for sharing. Did they ever figure out if the HSV was the link to your ItP. I think the same thing happened to my husband. His hematologist blew off the idea of valtrex as a treatment but it did make his platelet count go up. I hope you are doing well. Thank you for this post.

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