Am I the only one with both? In trying to find any possible underlying causes, my hematologist suggested that the HSV virus may be the culprit behind the thrombocytopenia. I don't know how I feel about that. In addition, the virus limits my options for treatment- steroids are out due to the possibility of causing a massive outbreak. And I can no longer take Valtrex because it causes thrombocytopenia. Arg!
SamIAm, you are not alone- though i hope you've found that out by now! I was just diagnosed with HSV2, and my counts definitely reflect it. It's nice to see i'm not the only soul dealing with HSV and ITP together, and i hope you've had successfull treament of both! My Nurse Practitioner put me on Valacyclovir [Valtrex], i haven't seen a problem yet! Might as well treat the HSV so that your counts stay up, right?
at any rate, good luck, and i hope things are going better for you!!
you gotta take the good with the bad, smile with the sad
love what you've got and remember what you had.
always forgive, but never forget
learn from your mistakes but never regret.
people change, things go wrong, but just remember:
life goes on!
You just answered a few questions for me. I wondered whether there was a link between HSV2 and ITP. I was vaccinated for Hep b the same year through work and thought that was the cause of my ITP. And every time I'm prescribed prednisone I have a problems. You're not alone. It's a lot to digest right now but i'l come back to this thread again.
Take care, x
I'm not sure that the drug Valtrex is the problem, but rather the HSV virus itself. In my case, I had ITP for 7 years before I contacted HSV-1 and had an outbreak. I took Valtrex for 7 days (I think) to clear it up. My platelet count before HSV was stable at 50. After taking Valtrex it went up to 126!. Within 2 months, was back to 53. So in my situation, platelets did not drop from meds.
I think my husband may have the same link with HSV and ITP. Do you think that is the cause of your ITp. Do you take valtrex every day now? When I discussed HSV and ITP link with his hematologist he blew it off.
Thank you for sharing. Did they ever figure out if the HSV was the link to your ItP. I think the same thing happened to my husband. His hematologist blew off the idea of valtrex as a treatment but it did make his platelet count go up. I hope you are doing well. Thank you for this post.
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