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Update: ITP & Gluten Intolerance

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1 year 5 months ago #73713 by ImPatient
Update: ITP & Gluten Intolerance was created by ImPatient
Hi, just a quick update: I've been relatively stable without meds for a couple years since I stopped eating vegan and started eating fish again (not sure if it was the cause). Then they also found out I have TG6 and DGP antibodies, not eating gluten has helped with a lot of symptoms like joint pain, not sure if with my blood too... 
Am usually between 90 & 140 now, a couple weeks ago was 80, but may be coincidence. I quit birth control a half year ago, that might change something...
That's all for now.
(f., 44 y., ITP diagnosis with 13000 in 2019, started a few years earlier. Past treatments: dexa, pred, nplate, revolade/promacta)

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1 year 5 months ago #73718 by MelA
Replied by MelA on topic Update: ITP & Gluten Intolerance
Good for you!! I think my hematologist would say that 80k is the same as your 90k.
Keep it up - I'm happy for you!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: ImPatient

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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1 year 4 months ago #73740 by mrsb04
Replied by mrsb04 on topic Update: ITP & Gluten Intolerance
Good new ImPatient I am pleased for you.

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
1 year 4 months ago #73741 by mrsb04
Replied by mrsb04 on topic Update: ITP & Gluten Intolerance
That should read news but I cannot edit it.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.