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Update: ITP & Gluten Intolerance

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3 months 1 day ago #73713 by ImPatient
Update: ITP & Gluten Intolerance was created by ImPatient
Hi, just a quick update: I've been relatively stable without meds for a couple years since I stopped eating vegan and started eating fish again (not sure if it was the cause). Then they also found out I have TG6 and DGP antibodies, not eating gluten has helped with a lot of symptoms like joint pain, not sure if with my blood too... 
Am usually between 90 & 140 now, a couple weeks ago was 80, but may be coincidence. I quit birth control a half year ago, that might change something...
That's all for now.
(f., 44 y., ITP diagnosis with 13000 in 2019, started a few years earlier. Past treatments: dexa, pred, nplate, revolade/promacta)

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2 months 4 weeks ago #73718 by MelA
Replied by MelA on topic Update: ITP & Gluten Intolerance
Good for you!! I think my hematologist would say that 80k is the same as your 90k.
Keep it up - I'm happy for you!!

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: ImPatient

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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2 months 2 weeks ago #73740 by mrsb04
Replied by mrsb04 on topic Update: ITP & Gluten Intolerance
Good new ImPatient I am pleased for you.

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  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
2 months 2 weeks ago #73741 by mrsb04
Replied by mrsb04 on topic Update: ITP & Gluten Intolerance
That should read news but I cannot edit it.

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