Thank you for replying MeIA!
That is the conclusion I’m coming to: that every patient with itp is unique… what makes it frustrating for me is that I’d like to know if my symptoms and lab results are weird because I have atypical itp or because i don’t have itp at all. I know I'm not likely to find a definitive answer in a forum, but the scientific literature is frustrating. I feel like every time I try to dig for information, scientific papers fall short: “we don’t have enough data on pregnant itp patients” “we haven’t tested this on enough patients” “here is this algorithm because we don’t have the tests to determine who has itp” etc. etc.
I even had the opportunity to see a professor who specialise in rare genetic platelet disorders and at first she said she thought I did have itp, but now she’s saying it might be genetic after all? It all seems very murky to me.
I know it’s nobody’s fault, it’s simply where the science is as of today, but I can’t help trying to find if some people have a disease that looks like mine.
(PS: 40G simply means 40,000, or 40 as we’d say as patients. 40G is just the way it’s written on my labs. Maybe it’s a french thing?)
But thanks again for confirming that bleeding symptoms don’t really correlate with platelet counts for you either!