Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Medical Alert ID

  • Laurenliw7
  • Topic Author
  • Offline
  • Diagnosed in October 2022
More
1 year 5 months ago #72972 by Laurenliw7
Medical Alert ID was created by Laurenliw7
Does anyone wear or carry a medical alert ID (bracelet, necklace, watch band, wallet card, etc) with them?

If you do, what do you have written on it? I’m thinking “ITP - bleeding disorder, no NSAIDS or aspirin”. 

Thank you!

Please Log in or Create an account to join the conversation.

More
1 year 5 months ago #72975 by CindyL
Replied by CindyL on topic Medical Alert ID
I have 2, one is just a cheap bracelet that says ITP.  My other one is official, and has ITP,  on prednisone and a couple of other things that I can't remember.  I don't wear either one of them any more, but probably should.  I'm in remission but know it could come back at any time.

Please Log in or Create an account to join the conversation.

  • Laurenliw7
  • Topic Author
  • Offline
  • Diagnosed in October 2022
More
1 year 5 months ago #72977 by Laurenliw7
Replied by Laurenliw7 on topic Medical Alert ID
Thanks, CindyL!

Please Log in or Create an account to join the conversation.

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
1 year 5 months ago #72978 by mrsb04
Replied by mrsb04 on topic Medical Alert ID
I wear an SOS talisman round my neck and have a steroid card in my purse.

Please Log in or Create an account to join the conversation.

More
1 year 5 months ago #72982 by MelA
Replied by MelA on topic Medical Alert ID
Good you have that around your neck mrsb - some put it in their purse or wallet but in an emergency they aren't going to take time to go looking in the wallet or purse or glove box etc to see if one has a medical alert.

I've been bad - haven't worn my bracelet in a number of years, have it over the gear shift which is probably a place they wouldn't take time to look either.

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

More
1 year 5 months ago #72984 by ImPatient
Replied by ImPatient on topic Medical Alert ID
I have an emergency card in my purse, says ITP, give tranexamic acid if bleeding too much, and which doctor to call for more info.
Not sure everybody would read and understand it, I've had quite strange experiences with a couple emergency doctors.

Please Log in or Create an account to join the conversation.

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
1 year 5 months ago - 1 year 5 months ago #72986 by mrsb04
Replied by mrsb04 on topic Medical Alert ID
I was told categorically not to use  just a purse also wear either a bracelet, or a dog tag/talisman round my neck. 
Our ITP association provides wrist bands but to be honest I'm not sure how much use they are as the information wears off quite quickly. 
The following user(s) said Thank You: MelA, ImPatient

Please Log in or Create an account to join the conversation.

More
1 year 4 months ago - 1 year 4 months ago #73008 by ImPatient
Replied by ImPatient on topic Medical Alert ID
That's a good idea Mrsb04! I'll consider it, if my platelets drop again. I might have found what caused ITP for me- MAYBE. They went up to 165000 a couple weeks after I stopped eating gluten, oat and buckwheat. Let's see if it stays that way. They finally discovered I have transglutaminase 6 antibodies... I really have no idea, I'll check in and tell about it once I can be more sure in a couple months or so. 

Please Log in or Create an account to join the conversation.

  • CJENNIGES
  • Offline
  • Newly diagnosed with ITP. Mom of 3 amazing humans. Very active in outdoors, family life, friends.
More
1 year 3 months ago #73058 by CJENNIGES
Replied by CJENNIGES on topic Medical Alert ID
I got two bracelets from Amazon. On front has my name and ITP low platelets and no BP cuff (because of lymph removal.)
On the back has hubbys name and phone and my blood type and dr. I wear every time I leave the house.

Please Log in or Create an account to join the conversation.