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Medical Alert ID 1 year 3 weeks ago #72972

  • Laurenliw7
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  • Diagnosed in October 2022
  • Posts: 2
  • Thank you received: 0
Does anyone wear or carry a medical alert ID (bracelet, necklace, watch band, wallet card, etc) with them?

If you do, what do you have written on it? I’m thinking “ITP - bleeding disorder, no NSAIDS or aspirin”. 

Thank you!

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Medical Alert ID 1 year 3 weeks ago #72975

  • CindyL
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  • Posts: 1587
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I have 2, one is just a cheap bracelet that says ITP.  My other one is official, and has ITP,  on prednisone and a couple of other things that I can't remember.  I don't wear either one of them any more, but probably should.  I'm in remission but know it could come back at any time.

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Medical Alert ID 1 year 3 weeks ago #72977

  • Laurenliw7
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  • Diagnosed in October 2022
  • Posts: 2
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Thanks, CindyL!

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Medical Alert ID 1 year 3 weeks ago #72978

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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I wear an SOS talisman round my neck and have a steroid card in my purse.

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Medical Alert ID 1 year 3 weeks ago #72982

  • MelA
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Good you have that around your neck mrsb - some put it in their purse or wallet but in an emergency they aren't going to take time to go looking in the wallet or purse or glove box etc to see if one has a medical alert.

I've been bad - haven't worn my bracelet in a number of years, have it over the gear shift which is probably a place they wouldn't take time to look either.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Medical Alert ID 1 year 2 weeks ago #72984

  • ImPatient
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  • Posts: 166
  • Thank you received: 32
I have an emergency card in my purse, says ITP, give tranexamic acid if bleeding too much, and which doctor to call for more info.
Not sure everybody would read and understand it, I've had quite strange experiences with a couple emergency doctors.

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Medical Alert ID 1 year 2 weeks ago #72986

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2164
  • Karma: 7
  • Thank you received: 626
I was told categorically not to use  just a purse also wear either a bracelet, or a dog tag/talisman round my neck. 
Our ITP association provides wrist bands but to be honest I'm not sure how much use they are as the information wears off quite quickly. 
The following user(s) said Thank You: MelA, ImPatient

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Medical Alert ID 1 year 1 week ago #73008

  • ImPatient
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  • Posts: 166
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That's a good idea Mrsb04! I'll consider it, if my platelets drop again. I might have found what caused ITP for me- MAYBE. They went up to 165000 a couple weeks after I stopped eating gluten, oat and buckwheat. Let's see if it stays that way. They finally discovered I have transglutaminase 6 antibodies... I really have no idea, I'll check in and tell about it once I can be more sure in a couple months or so. 

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Medical Alert ID 10 months 3 weeks ago #73058

  • CJENNIGES
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  • Newly diagnosed with ITP. Mom of 3 amazing humans. Very active in outdoors, family life, friends.
  • Posts: 2
  • Thank you received: 0
I got two bracelets from Amazon. On front has my name and ITP low platelets and no BP cuff (because of lymph removal.)
On the back has hubbys name and phone and my blood type and dr. I wear every time I leave the house.

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