Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Sharing medical records

  • Lman
  • Topic Author
  • Offline
  • We cannot change the cards we are dealt, just how we play the hand.
More
1 year 3 months ago - 1 year 3 months ago #72864 by Lman
Sharing medical records was created by Lman
Hi.
I saw an ad on the internet a company was claiming to be collecting medical records, removing identities and names, and using them for research purposes. They were interested in ITP patients. I am unsure whether to participate, but there was a $150 compensation for that. Would it be wise to do so? They asked for my signature and the doctor's name and address to access medical records on my behalf.

Please Log in or Create an account to join the conversation.

More
1 year 3 months ago #72865 by MelA
Replied by MelA on topic Sharing medical records
No it would not be wise to do!!!   Never sign away your medical records!!!

Just curious - you saw it on the internet - did it tell you what company it was who wanted to have your records for research and supposedly send you $150??  

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Lman

Please Log in or Create an account to join the conversation.

  • Lman
  • Topic Author
  • Offline
  • We cannot change the cards we are dealt, just how we play the hand.
More
1 year 3 months ago #72867 by Lman
Replied by Lman on topic Sharing medical records
Hi.
I did not sign that. 
It was picnichealth. I was searching for ITP on google and the ad showed up.

Please Log in or Create an account to join the conversation.

More
1 year 3 months ago #72870 by MelA
Replied by MelA on topic Sharing medical records
Good Lman - never ever heard of picnichealth, may be legit but I wouldn't trust it!!

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

More
1 year 3 months ago - 1 year 3 months ago #72872 by poseymint
Replied by poseymint on topic Sharing medical records
I read a bit about this company. It looks like they started out as an organizing tool? You allow them access to your medical records and they search for records and organize them on their site. Well that doesn’t generate any money except for site advertising. So now they are gathering and selling the collected group information without any identifying names swearing to maintain your privacy.  I personally wouldn’t do it, it seems their access is unlimited. If they would pay each year for the access then it would have some limit. In my opinion, it is not worth $150.

When I was first diagnosed with ITP, I didn’t have insurance-I had lost my husband’s insurance in divorce. I couldn’t get insurance because now I had a chronic illness and back then 2009, insurance could discriminate against people with “preexisting conditions " refusing to insure them. Plus enforcing waiting periods, and even dropping people from coverage when they got cancer if they had reached their “lifetime limits” on costs. If a person tried to keep anything private from an insurance company it could be insurance fraud. So I guess because I was discriminated against I am very protective of my medical information. Also I have access to the information through my patient portal so don’t need anyone doing it for me. Happy ending: everything changed with Pres Obama’s Affordable Care Act. It stopped insurance companies from discrimination and also allowed patients to access their own information. Before that, doctors could keep what they write about a patient private.
The following user(s) said Thank You: MelA

Please Log in or Create an account to join the conversation.