Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Splenetomy 4 months 2 weeks ago #72657

  • charlotte
  • Offline
  • Posts: 46
  • Thank you received: 1
It's been years since I've been on this site many years ago I had splenetomy 2016 not by choice Had emergency surgery they found my spleen enlarged My platelets are in 100's since surgery I'm now compromised immune with the pandemic it scares me Had antibody testing after booster My hemo said body didn't make antibodies Has anyone had covid after splenetomy and few symptoms?
Also when leaving hospital 2016 was not told of future vaccines to have later So if someone could let me know I'd appreciate Thank you 

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72658

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
Charlotte 
Have a look at this list, it should help.
www.immunize.org/catg.d/p4047.pdf

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72659

  • CindyL
  • Offline
  • Posts: 1515
  • Karma: 1
  • Thank you received: 225
I had my splenectomy in 2006 and the only vaccines I get are the flu shot,  the Pneumonia every 5 years and most recently, the Covid vaccine.
I'm pretty sure I had the MMR as a child and I do want to get the Shingles vaccine.  Unfortunately, it is very expensive here and we can't afford it.
That's quite a list you shared mrsb!  I wasn't told to get any of them other than the ones I mentioned.

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72660

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
CindyL
I was directed to it from CDC site. 

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72661

  • CindyL
  • Offline
  • Posts: 1515
  • Karma: 1
  • Thank you received: 225
Oh, ok.  Thanks mrsb.

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72662

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
You're welcome 

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72663

  • MelA
  • Offline
  • Posts: 1059
  • Karma: 2
  • Thank you received: 351
Cindy - I was sent to an immunologist a few years back - he told me not to get the new shingles vaccine because it had not been tested on those with immune system problems - that may have changed since this was a while back.  I'll try to remember to ask my hematologist when I see him next, which hopefully won't be until the yearly check up late next year.   I have had shingles 2x already.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72664

  • CindyL
  • Offline
  • Posts: 1515
  • Karma: 1
  • Thank you received: 225
My family doctor is recommending both Steven and I get the shingles vaccine.  I think he says to get the 2 shot one.  We haven't discussed it in a while.
If I remember correctly, my grandmother had shingles.
Was it as painful as the tv ads suggest, Mel?

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72666

  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 2008
  • Posts: 398
  • Karma: 2
  • Thank you received: 91
This thread has gotten a little off track, but I hope Charlotte won't mind me adding my opinion about the newer, two-part shingles vaccine.  I don't want to talk anyone else out of shingles vaccination.  Just want to offer food for thought.

I decided I wanted the vaccine after declining it for many years, but I didn't just charge ahead.  I found a medically-reviewed article in US News and World Report from last November titled, "Why You Should Get the Shingles Vaccine Soon".  Dr. Ardeshir Hashmi, a geriatrician and endowed chair at Cleveland Clinic is quoted in the article.  He says that for people who have any sort of autoimmune disease, "the shingles vaccine, specifically, is not for them."  The entire article can be found here ~ health.usnews.com/health-care/patient-advice/articles/shingrix-shingles-vaccine

I didn't stop researching there.  I also learned that Shingrix is made with Chinese hamster ovary cells, the same as Rituxan, Humira, and some other drugs.  Since I had such an abysmal reaction to Rituxan, I'll have to take my chances with shingles itself.  
The following user(s) said Thank You: MelA

Please Log in or Create an account to join the conversation.

Splenetomy 4 months 1 week ago #72669

  • MelA
  • Offline
  • Posts: 1059
  • Karma: 2
  • Thank you received: 351
Cindy my 2nd bout was more painful - an itch type pain.   It was a larger area on my back, round & looked like a big cluster of spider bites.  The 1st was in back at my waist.  

Cindy my family doctor had it on the list of immunizations for me - but after my immunologist said not to I told my family doctor no I would not get it.   Family docs aren't that in tune with ITP.

And as Janet said, we got off track so my apologizes to Charlotte (except we are still commenting on vaccines) - however if something arises in a thread that needs attention then we must reply to that situation.  Thank you for that info Janet, I'm sure that will help others!!  And I'm glad to know my immunologist wasn't off-base telling me not to get the shingles vaccine (the "new" 2 shot vaccine, Shingrex, is the only one available now in the US - I think in Canada there is still both, but Shingrex is a lot more effective).   
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo