Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Something to take a look at. 5 months 2 weeks ago #72578

  • Chad89
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
  • Posts: 78
  • Thank you received: 15

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72579

  • MelA
  • Offline
  • Posts: 1059
  • Karma: 2
  • Thank you received: 351
I don't click on anything I do not know what it might be.

Chad did you post this?  What is it about?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72580

  • Chad89
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
  • Posts: 78
  • Thank you received: 15
Hey. Sorry I should have said what it was. It’s just a video about many underlying causes of autoimmune disorders and what is sometimes not told to patients by Drs 
The following user(s) said Thank You: MelA

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72581

  • JJ
  • Offline
  • Posts: 224
  • Thank you received: 77
I looked at the video, saw who it was speaking and left. He's well known and often described as a quack.

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72582

  • MelA
  • Offline
  • Posts: 1059
  • Karma: 2
  • Thank you received: 351
I looked up Dr. Eric Berg, DC and found he specializes in weight loss - how did he become an expert on autoimmune diseases?
I too found that he is labeled as a quack.  Thanks but no thanks Chad.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72583

  • Chad89
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
  • Posts: 78
  • Thank you received: 15
I’m not sure. Just thought it contained some interesting information. Everyone is entitled to their opinions. All good. To be fair, he might know a little more about nutrition than the we do with whatever medical school we all went to. Don’t be so quick to bash someone and call them a quack just because they don’t completely align with what you view as a credible Dr. Maybe he doe’s specialize in weight loss and Keto. Doesn’t mean it’s wrong. There will always be skeptics on both sides. I hear what you’re saying though. Any word on this new drug trial one of our members is participating in?

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72584

  • MelA
  • Offline
  • Posts: 1059
  • Karma: 2
  • Thank you received: 351
 mrsb is doing well last I heard and her count went up some.
If you lived in the Denver area there is a trial that will be starting for those w/a count <30k and treatment quit working (think I remember that right).  

Believe me I'm not the only one to "bash" the doctor - read the reviews on him.  
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72585

  • Chad89
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
  • Posts: 78
  • Thank you received: 15
Good to hear! Hopefully it keeps working. 

Please Log in or Create an account to join the conversation.

Something to take a look at. 5 months 1 week ago #72586

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
Unfortunately mrsb is on a prednisolone rescue as my count crashed to 4 and I'm  covered in multiple bruises. Still continuing with the trial though for the time being. 
I too read up on Dr Berg. Some dreadful reviews I have to say.  drericbergscam.blogspot.com/2016/08/dr-eric-berg-scammer-read-this-before.html

Please Log in or Create an account to join the conversation.

Something to take a look at. 3 months 5 days ago #72726

  • adamt
  • Offline
  • Posts: 7
  • Thank you received: 2
Is anything he actually says in the video incorrect? I'm not all that interested in internet personalities but pretending like the medical establishment has anything to contribute at this time apart from giving people anachronistic treatments like prednisolone is wrong.
The following user(s) said Thank You: Chad89

Please Log in or Create an account to join the conversation.

Something to take a look at. 3 months 5 days ago #72727

  • Chad89
  • Offline
  • Diagnosed with ITP in 2007 at age 18.
  • Posts: 78
  • Thank you received: 15
That was my thought on it as well Adam. While I don’t think he had ll the info, the information he is sharing is backed by other doctors and studies. It’s nice that people are trying to look at the underlying causes instead of just throwing heavy medications at people.

Please Log in or Create an account to join the conversation.

Something to take a look at. 1 month 15 hours ago #72891

  • Vicky14
  • Offline
  • Posts: 17
  • Thank you received: 1
I definitely agree with point number 5. Two of my instances occurred after huge losses, however, I've since had other losses and stresses and not had it, so I think it's probably a combination of things. 

I find the recent research into Adverse Childhood Events really interesting and a little scary - www.pacesconnection.com/blog/adverse-childhood-experiences-increase-risk-for-chronic-diseases-it-s-not-psychological#:~:text=Risk%20for%20the%2080%20or,others%20goes%20up%20by%2020%25.

I also think that Western diet and lifestyle has a lot to answer for autoimmune disease, I think there has to be a reason for the massive increase. I don't think autoimmune conditions were so prevelant pre industrial revolution.

Please Log in or Create an account to join the conversation.

Something to take a look at. 1 month 15 hours ago #72892

  • Vicky14
  • Offline
  • Posts: 17
  • Thank you received: 1
Here is scientific study that the ACE (Adverse Childhood Events) and autoimmunity was looked at:

www.ncbi.nlm.nih.gov/pmc/articles/PMC3318917/

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo