I have been diagnosed with ITP since Aug 2020 - I am 32yo. I am wondering if anyone just receives the Nplate tx on an as needed basis vs a cadence?
My numbers hover above 50k most of the time and I am also on promacta 75mgs daily - I feel like if my numbers are above 50k I should be able to skip the injections (which often has side effects) esp if I am feeling well which is 98% of the time. Please let me know if any physicians have been open to this.
ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
Thank you received: 575
If your count is generally above 50 whilst taking Promacta why on earth have you been prescribed NPlate too?
The whole point of any ITP treatment is to keep the platelet count safe not try to bring it up to normal levels.
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