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Quick update- staying in the 100s unmedicated 6 months 2 weeks ago #72230

  • ImPatient
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  • Posts: 142
  • Thank you received: 22
Hey! I thought I'd let you know how things went for me since I haven't posted in a while.
Reminder- After Dex, Pred, NPlate & a year Revolade (lowest count 13) I started eating fish (vegan for 17 years before that) and at the same time my platelets went into the hundreds, we lowered Revolade every few weeks.
Now, I've been off for over a half year. A lot less joint pain, I was 30kg over my normal weight, now 20kg. Still diarrhea, Xanthelasma, and fatigue. Hair stopped growing above my belt line, now grows very slowly again. I got my period back too, I didn't have it most of the time on Revolade. Once I was at 40, but it might've been a mistake, other than that always 100-140 since I last posted. Hema check-up every three months. I hope you're all well. 

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Quick update- staying in the 100s unmedicated 5 months 2 weeks ago #72304

  • VVeenM
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  • Posts: 12
  • Thank you received: 3
That’s wonderful news!!
The following user(s) said Thank You: ImPatient

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