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my update 1 year 10 months ago #71894

  • gozorakgogo
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  • Posts: 135
  • Thank you received: 19
Hey all

Been a while. After having skipped my last 3 Hemo appointments for CBC's(the last one being this past April) I FINALLY went this past Monday. After my Diagnosis and 10 day hospitalization in July 2021 with a platelet level of 2. I went through the 4 Ritux treatments(Jul/Aug 2021) and received weekly Nplate injections from July to Nov 2021. My level was at 100 at my final Nplat injection a year ago. It remained right around or slightly above 100 up until my last CBC this past April(never dropping below 100). After 7 months of no CBC's and a full year since my last treatment of any kind my platelet level is now at 179. Great news.

Im one of the lucky ones. But for those of you who may be newly diagnosed, its rarely as bad as you initially think it is. The forum here was of great assistance to me i those first few months. Since that last visit and CBC in April I had actually stopped thinking about ITP. Its as if it never happened and I never worry about it. At all. I think of it as a one time thing. Of course we all know that the possibility(if not probability) exists that remission ends and its back to ground zero. I actually dont care. If that were to happen unlike last time I would know what was up and not give it any thought.

Hope all is well with everyone

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my update 1 year 10 months ago #71895

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2150
  • Karma: 7
  • Thank you received: 620
Pleased for you Gozo. Long may it last

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