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ITP Guilt 2 months 2 weeks ago #71887

  • Ssigrist
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I had ITP when I was 11. I’m 50 now.  I have had no relapses since I was released from my 2 week hospital stay at 11.  

I deal with guilt from never relapsing.  

ive attended support groups for ITP and I’ve never met another person who wasn’t chronic.  I feel terrible around other folks with ITP because I certainly don’t understand what they  are going through and can’t figure out my role in the community that I feel like I should be a part of.  

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ITP Guilt 2 months 2 weeks ago #71888

  • MelA
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I don't understand your guilt - I've had ITP since 1989 and living a full life, even moved to Japan shortly after diagnosis and then to Hong Kong.   

You should not feel guilty - it wasn't your decision to never have low platelets again.  Have you thought about getting help in hopes of getting over this guilt?   Life is too short to have misplaced guilt. 

Take care now!!  
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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ITP Guilt 2 months 1 week ago #71893

  • Juliandrea85
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Don't be guilty, just happy! I've chronic itp since i was 11 years old also, and my doctor at that time was hoping itp was acute, not chronic, because the most part of children don't develop chronic itp.
Imagine to be guilty for every person in the world who suffers extreme poverty, illness, and many other problems. 
Allow yourself to feel free from itp, and also part of the community because we, al itp patients, need people to talk to, who understand us :) 

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ITP Guilt 2 months 1 week ago #71897

  • Ssigrist
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Much appreciated.  I just feel like I wish there was something I could provide to the ITP community.

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ITP Guilt 2 months 1 week ago #71898

  • poseymint
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Your story is important. It could provide much needed hope to the very worried parents of children with ITP. If my child had ITP I would certainly want to hear that it could resolve and not come back. And often a personal story is more effective at reassuring a frantic parent than a doctor with his statistics.

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