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Test for Food Sensitivity

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2 years 11 months ago #71692 by Meredith
Test for Food Sensitivity was created by Meredith
Have any of you been tested for food sensitivities? Have any of you deleted certain foods from your diet and found your platelets increased?.

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2 years 11 months ago #71694 by MelA
Replied by MelA on topic Test for Food Sensitivity
No & no

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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2 years 11 months ago #71698 by MicGreen
Replied by MicGreen on topic Test for Food Sensitivity
Hi Meredith,

I was diagnosed in December 2020 when I went in for an annual check up with my doctor and my platelets were at 26k.
Working with a hematology team, it was attempted to wean me off of prednisone three times. My platelets seemed to respond well to the corticosteroid until I got down to 5mg and they would plunge. I am 3 weeks out from my last infusion of Rituximab and my platelets seem to have stabilized. Though it still a short time from the last treatment.

I have a friend who is a clinical nutritionist and has lots of functional medicine training. I'm working with her to look at food sensitivities and ways to support less inflammation in the body through diet. I am nearly 2 months into a modified v. of an anti-inflammatory diet (no dairy, wheat, eggs, soy, corn). Would love to hear from others if they have tried this route and learn together. I can't tell if there is a correlation with my platelet count because of how the timing coincides with the recent Rituximab treatment but the approach feels really helpful to me.

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2 years 11 months ago #71699 by Meredith
Replied by Meredith on topic Test for Food Sensitivity
I am still in shock; my platelets went up to 151,000 today. July 3 they were 18, which was typical—- (I lived on rescues when necet)—- no matter what I took, including $7500 out of pocket Promacta copay and NPlate and Cellcept. Rituxan failed twice.. After a food sensitivity test, Naturopath found I was highly sensitive to wheat and polysorbate 80. I have not eaten wheat products nor foods with emulsifiers since July 7th. I have changed absolutely nothing else.

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