I first had ITP aged 15 (1993)...platelet count 2 (UK numbers... think that's 2000 in US money)...after a couple of weeks in hospital with steroids and sandoglobulin I went home...I was slowly tapered off steroids over many months and all good. Normal platelet levels for 5 years. Then another episode (1998)... this time 0 platelets...same treatments...all good again...then a year and a half later another repeat....i've been 22 years without any further incidents of ITP. Wondered if others have had a similar experience of ITP...a lot seem to be chronic....would love to hear from anyone that's had two or three incidents and no others. Would be interested if any theories as to what might cause the incidents.
I had 2 instances if I remember correctly where I bruised really easily, and 1 where a minor cut took way too long to stop in the 6 years prior to my only ITP diagnosis. That was completely abnormal because it takes a lot to bruise me and cuts had always stopped bleeding with no issues.
I never saw a doctor or thought much of the unusual bruising or bleeding after healing. I participated in contact sports during that time frame with no problems so it was not a consistent issue. I went to a doctor 9 years ago with red dots everywhere and ridiculous bruising. I was diagnosed with ITP and hospitalized with a count of 1. I was treated with Prednisone and IVIG and released 5 days later when my count jumped from single digits to 42. It has been over 150 every draw since, usually over 200. I don't know what caused my ITP, but I did test positive for H Pylori a few weeks after ITP diagnosis. I eradicated it with PrevPack.
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
Platelet Disorder Support Association 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003 E-mail: email@example.com