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Information if anyone taking blood thinners and what type? 2 years 5 months ago #69333

  • Lori
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Been almost 5 years since I've logged in as after two prednisone treatments back in 2012-2013, my counts were stable to just live my life with semi-annual CBCs. Living the dream until 2017 diagnosed with PVD & had 95% blockage in left iliac artery thus angioplasty/stenting performed and put on plavix for 3 months. No big drop in platelets (running at 80 before and 70 after).

May 2018, had CVA (stroke), hospitalized for 3 days but due to platelet count ER could not give injection to break up clot (lesson learned that no concern to rush to ER as couldn't do anything for me). Put on statin medication and advised to take daily aspirin. Platelets average in the 50's which hematologist states is okay and doesn't need to see me unless drop down into/below 30's.

Been chugging along until a month ago & had a TIA (blood clot to brain but dissolved) so recovered. Issue is that is a potential sign for another stroke but only help that could be given is blood thinners...which they won't do with my platelet count of 54 as too high risk :(

My question is has anyone been scripted a blood thinner for a medical condition? What type or dosage & has it affected your platelet count?

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Information if anyone taking blood thinners and what type? 2 years 5 months ago #69334

  • MelA
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Lori a lot of times weekends are pretty slow - hopefully someone who can help you will see your post soon and reply. Have seen a couple here who have been on blood thinners but can't recall who/when/why/their count.

You have had a lot going on - so sorry and I really hope you are doing well!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Information if anyone taking blood thinners and what type? 2 years 5 months ago #69335

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Lori
You have gone through a lot I'm sorry to hear this .
My haemo told me if ever I am going to be immobilised for a period of time I can have low molecular weight heparin so long as my count is above 50 but if it is below 50 who-ever is in charge of my care has to contact her for advice.
There appears to be a paucity of information regarding anti coagulation therapies in AITP however I've done a bit of digging around and found a few articles for your perusal which I have hyperlinked below.

Have you been checked for antiphospholipid antibodies by the way? They can be linked to blood clotting in ITP, see pubmed.ncbi.nlm.nih.gov/22205846/

Research articles
www.jwatch.org/na47924/2018/11/16/anticoagulant-therapy-immune-thrombocytopenia
ashpublications.org/blood/article/132/25/2684/39558/
Managing-antithrombotic-therapy-in-immunehttps://www.sciencedirect.com/science/article/pii/S0037196313000437
www.ncbi.nlm.nih.gov/pmc/articles/PMC6355248/
www.longdom.org/open-access/risk-of-thromboembolism-in-patients-with-immune-thrombocytopenia-2329-8790.1000185.pdf
core.ac.uk/reader/82584158
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Thromboembolism and anticoagulants/blood thinner use 2 years 5 months ago #69338

  • Lori
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Interesting reading as not much on the study of thromboembolism with ITP and seems standard is just the wait/see approach or aspirin (which have been taking for a year+). I'm waiting to see if neurologist has any advice next week & will message my hematologist for his opinion on antiphospholipid antibodies/anticoagulation therapy. Only antibody test done in 2012 was for "Anti GP IIB/IIIA antibodies" which were detected. Really who wants to just wait around for another stroke, especially in this environment with the coronavirus? Family history of arteriosclerosis yet my cholesterol is down to 172 on the statin so something else going on.

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Strokes/TIAs with low platelets 2 years 5 months ago #69353

  • Lori
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Well, guess not many folks taking any anticoagulants/blood thinners out there. At least with having a stroke and TIA, the 3-4 hour rush to an ER, though may help depending on severity of symptoms, is not such a necessity as can't use the tissue plasminogen activator (tPA) that works by breaking up clots if have platelet count below 100. It was good that they checked artery blood flow to make sure didn't have a blockage that needed surgery but when those tests were clear just got to hang out in an ICU for 3 days. Good luck all!

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