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Struggling 1 year 10 months ago #68633

  • rwia1964
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I'm a 17 year old male, senior in high school. I was diagnosed in November 2019, and have gotten at least 4 treatments of IVIG, blood transfusions and platelet transfusions. Along with tons of IV steroids, and two different forms of oral. Tried promacta end of December, worked for about a month, and then just stopped. Going to start my 4th week of Nplate on Thursday, but I have yet to see a response to Nplate at all. I play volleyball, and because of ITP i have only been at a safe rang to play for about a month. I've consistently been below 5,000 for the last month, and between November and January ive almost always been below 10,000. Is there any hope for Nplate?

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Struggling 1 year 10 months ago #68636

  • DSD88i
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Could you perhaps look into the forum 'natural treatment methods' here and try some?

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Struggling 1 year 10 months ago #68639

  • JJ
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Nplate can take some time to get the right dose. There are ten different doses and it's a matter of increasing each week until something happens. Presumably you started on the first level dose and increased each week. If so you have a way to go yet before giving up.

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Struggling 1 year 10 months ago #68646

  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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What dose of Promacta were you taking? When it stopped working for you, did you increase the dose?

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