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TOPIC: New guidelines

New guidelines 1 week 1 day ago #68040

  • JJ
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New guidelines 1 week 1 day ago #68041

  • JJ
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  • Posts: 77
  • Thank you received: 24
Most interesting thing in these guidelines for me is the way the advised use of steroids has changed. They now say to start reducing the dose after two or three weeks and aim to be off them completely in six weeks. That sounds wonderful compared with what many of us went through.

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New guidelines 1 week 1 day ago #68042

  • mrsb04
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  • Diagnosed in 2014. I'm a retired renal specialist nurse
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JJ
Sounds absolute heaven. 5 years I've had ITP and still tapering. Down to 1mg/day now.
Very comprehensive guidelines, well referenced and well presented.

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New guidelines 4 days 23 hours ago #68069

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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Oh that was quick. They were talking about how it may take a long time for everyone to agree to it at the PDSA conference this summer. Guess their wasn't much disagreement.

Need to read through the whole thing. On skimming, I'm a little disappointed they didn't go into detail about why a TPO diagnostic test is, or is not, helpful. As I recall from the relevant study, TPO level predicts TPO-RA dosage - which aligns with my ITP treatments table. Maybe I missed it in the document.

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