Diagnosed jan 2015 at age 50 with 13,000 platelets.
Thank you received: 67
It's been a while since I have been on the site. Luckily, for me, that is due to a lack of issues! I have had thinning hair for most of my adult life. Before I was diagnosed with ITP I was using a DHT blocker and minoxidil daily for about 2 years. It actually worked pretty well--I know I'll never have great hair, but at least I had hair! When I was diagnosed I was concerned that the use of the DHT blocker and the minoxidil were the reason for the ITP. Of course, once I stopped, the newly grown hair all fell out. Very sad. Fast forward a few years and I would like to start up again with the hair loss treatment, but try and be more pragmatic. I have not found any research or statements on this site about minoxidil and ITP, but I did see a few older posts about biotin (also called Vitamin H or Vitamin B7) and concerns that it might have caused lower platelets. I wondered if there were any current posters who had any experience. I did find a DHT blocker that does not have biotin. I was using Nioxin as a shampoo and then freaked out when I read the ingredients and saw that biotin was listed! I am not willing to risk my platelets for hair, but I sure would like to have more hair! Anyone have any comments for me!
Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
Thank you received: 556
Just searched uptodate and emc (UK meds bible for nurses) can find nothing except EMC says thrombocytopenia is an extremely rare side effect of systemic minoxidil
Emily, long time no see.
I get the impression from those earlier posts on Biotin that the dose was pretty high.
How about Coconut oil? I remember reading it is good for skin. Perhaps it is good for hair? Looking at a quick search result, perhaps it is - at least for some. Isn't a scalp fungal infection one of many possible causes for loss of hair? Seems like Coconut oil would help rid oneself of the infection?
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