It's been a while since I have been on the site. Luckily, for me, that is due to a lack of issues! I have had thinning hair for most of my adult life. Before I was diagnosed with ITP I was using a DHT blocker and minoxidil daily for about 2 years. It actually worked pretty well--I know I'll never have great hair, but at least I had hair! When I was diagnosed I was concerned that the use of the DHT blocker and the minoxidil were the reason for the ITP. Of course, once I stopped, the newly grown hair all fell out. Very sad. Fast forward a few years and I would like to start up again with the hair loss treatment, but try and be more pragmatic. I have not found any research or statements on this site about minoxidil and ITP, but I did see a few older posts about biotin (also called Vitamin H or Vitamin B7) and concerns that it might have caused lower platelets. I wondered if there were any current posters who had any experience. I did find a DHT blocker that does not have biotin. I was using Nioxin as a shampoo and then freaked out when I read the ingredients and saw that biotin was listed! I am not willing to risk my platelets for hair, but I sure would like to have more hair! Anyone have any comments for me!
Emily we are all different but I have been taking 1000mcg of biotin for a while now and have had no problems with my count. For the life of me I can't recall why I started taking it but it wasn't for hair. It can interfere with labs so I'd ask my doctor about that. I just found this out so will be checking with my doctor next time labs are ordered.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
Emily, long time no see.
I get the impression from those earlier posts on Biotin that the dose was pretty high.
How about Coconut oil? I remember reading it is good for skin. Perhaps it is good for hair? Looking at a quick search result, perhaps it is - at least for some. Isn't a scalp fungal infection one of many possible causes for loss of hair? Seems like Coconut oil would help rid oneself of the infection?
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