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TOPIC: I had my splenectomy April 2, 2019.

I had my splenectomy April 2, 2019. 3 months 3 weeks ago #67063

  • Kayla93
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  • I am 25. I have had Chronic ITP for 2 years now but just got diagnosed with it. Currently going through a bunch of tests to try to diagnose something other than Chronic ITP. I am happily married with 3 children. 4 years, 1 year, and i just had my 3rd in J
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Okay so I had my splenectomy on April 2, 2019. About a week after the surgery my platelets were at 573,000. It is now July 19, I had blood work done July 17 three in a half months after the surgery and my platelets were semi low at 106,000 with a high white blood cell count of 14.3. My Hematologist's nurse practitioner is who I had to see since my Dr was out of town. She said it is normal for my platelets and white blood cell count to be abnormal a few months after a splenectomy and it should be normal next month. Has anyone been through anything like this? Don't sugarcoat anything. I'm hoping it's normal and that it may go up in a month. Let me also note I did not react to prednisone, and IVIG only worked for 3 weeks then they would go back down reason for the splenectomy.
Platelets please..

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I had my splenectomy April 2, 2019. 3 months 2 weeks ago #67091

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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Kayla, don't know the answer to your question. But it sure is good to hear that it continues to be working. Thanks for the update.
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I had my splenectomy April 2, 2019. 3 months 2 weeks ago #67099

  • JJ
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White counts are always high after splenectomy. I'd forgotten that until I just read your post. Sometimes they stay fairly high for a long time so it's normal. It's not really normal for the platelet count to come down that low but it may stabilise where it is. Here's hoping.
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I had my splenectomy April 2, 2019. 3 months 2 weeks ago #67115

  • karenr
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My platelets were only normal for a month after MY splenectomy, so three months sounds more promising than mine. I WAS responsive to prednisone though, and when it was determined that my splenectomy had failed, I went back to prednisone. My platelets went from a high of 684K, 10 days after the surgery, to 208K, 20days after surgery, to 128K five weeks after surgery, to 26K seven weeks after. They rallied a little, but 10 weeks after surgery they fell to 10K, and we agreed the surgery had not been successful. I hope you have better luck than I did.
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I had my splenectomy April 2, 2019. 3 months 2 weeks ago #67136

  • Kayla93
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  • I am 25. I have had Chronic ITP for 2 years now but just got diagnosed with it. Currently going through a bunch of tests to try to diagnose something other than Chronic ITP. I am happily married with 3 children. 4 years, 1 year, and i just had my 3rd in J
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I really do hope that it helped. It was over 500,000 after the surgery and now 3 months after it is down to 106,000 as of last week. I'm still bruising easy so it terrifies me so much. I really don't want to hear my hematologist say I'm sorry the surgery did not work.
Platelets please..

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I had my splenectomy April 2, 2019. 3 months 1 week ago #67183

  • johnmerrick
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the surgery could have failed don't look for them to tell you until they absolutely 100% believe it- they aren't in the business of worrying people unnecessarily. truth is you were too fast to do the surgery. my first doctor wanted to do it (surgery) if the prednisone didn't work- that was the only thing i had tried. i switched doctors. i went to a new doctor he told me if the prednisone doesn't work there are plenty of other drugs you can try. i'd switch doctors even if the surgery worked.
have you asked them what do we do if the surgery didn't work? i'm pretty sure they will say we'll cross the bridge when and if we come to it which means they have no clue.

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