Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Sudden increase of platelets without medication 3 years 10 months ago #65540

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Dear all,
Since I shared the bad news i want to share also still good news.
on 3rd January i was 43000 with 15mg pred

today 10th january i was 74000 without medication for order prescription from 4th January...

Not even doctor could explain it....

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65544

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
  • Posts: 1699
  • Karma: 10
  • Thank you received: 246
That last Dex pulse did more for you than expected?

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65545

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
The last Dex pulse took place one month ago. After 0ne week I.was on 39.000. Last week i was on 43000 and today on 74000....
Maybe i can keep it like this and forget all meds..... crossing fingers.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65567

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2369
That's great! The thing about ITP is that it's unpredictable. I've had counts go up with no explanation. We always assume that counts will drop if we don't treat but that isn't always the case.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65593

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Today 18th January my count dropped to 43000.
Still happy because according to my doctor I dont need medication. We are in a "wait and see" mode with tests every 10 to 15 days if no bleeding (I never had any bleeding anyways).
However, he couldnt explain why it wents up to 74.000 or dropped to 43000. Something must have caused it. It cant be magic and thats why I am not happy about the current research situation on ITP. I had a nice 74000 when I was on holidays in Spain and a 43000 back on my job to Estearn Europe. is it the polution? Was the cold I had before the 74000? was the Omeoprazol 40 mg i took until 3 January?
Well..... I hope the research interest in ITP increases to leave the middle ages medical approach because I feel like we can as well put a chicken leg over or doors to fight it...:(

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65594

  • b2h
  • Offline
  • Posts: 148
  • Thank you received: 47

Today 18th January my count dropped to 43000.
I feel like we can as well put a chicken leg over or doors to fight it...:(


hahaha I like that.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65601

  • johnmerrick
  • Offline
  • Posts: 118
  • Thank you received: 8
diet?

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65609

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2369
Groucho:
Platelet counts fluctuate constantly, and so do the antibodies that destroy them. Illnesses and medications can have an affect on platelets too, but a difference of 31k in a week or more isn't a surprising occurrence. Hopefully you go back up a bit from here.
The following user(s) said Thank You: GrouchoMarx

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65637

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
I am not on diet but i try to eat less hidrats.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65638

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Thanks for the support.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65639

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
55000 platelets today on January 28th...
I am happy I might have left behind those horrible corticoids that destoyed my life literally....
I want to resume playing soccer. The doctor told me after 70,000. Crossing fingers

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65640

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
:)

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 10 months ago #65649

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2369
Good! Your counts are just bouncing around at a safe number for now.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 9 months ago #65662

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Crossing fingers.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 9 months ago #65663

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Crossing fingers

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 9 months ago #65707

  • GrouchoMarx
  • Offline
  • I would never recommend an illness that choses people like me.
  • Posts: 167
  • Thank you received: 16
Today 8th February, platelets count dropped to 39000..... crossing fingers to keep it over 30000. But the pattern is to go down unfortunately.
I was on weekend 2 weeks ago to the mountain and my platelets were 55000. I left Spain with 73000. Could it this environment be the one pushing down my platelets? Mmmmm

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 3 years 8 months ago #65971

  • sillyman
  • Offline
  • Posts: 23
  • Thank you received: 3
Keep eating and drinking whatever you ate and drank. I strongly believe natural remedies can cure us. All the best. Keep it up.

Please Log in or Create an account to join the conversation.

Sudden increase of platelets without medication 1 year 10 months ago #70429

  • Vancouver40
  • Offline
  • Received diagnosis of ITP in July of 2016 after going to emergency in Vancouver, BC, Canada and finding I had 3 platelets at that moment. Repeatedly had crashes every 3 to 6 months. In 2019, one crash & 2020, after an imminent crash, raised them naturally
  • Posts: 13
  • Thank you received: 9
The following assisted me in naturally increasing my platelets several times this past year 2020:
-drinking the electrolyte beverage Pedialyte. I would drink 1 litre throughout the day. Perhaps even two bottles over two days. I was dehydrated regularly.
- taking Probiotic from Renew Life brand daily. 80 or 100 billion bacteria.
- taking Multi Mineral and Multi vitamin from brand TrueHope called EMPplus. It's a daily with the entire spectrum of Vitamins and minerals needed by the body.
- Vitamin D and K2 once a week. Which might explain better numbers when you were in Spain with all the sunshine exposure which is Vitamin D.
Hope some of these things that worked for me may be of assistance for you. Wishing you strong platelets!
The following user(s) said Thank You: Columbia09

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo