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TOPIC: Sudden increase of platelets without medication

Sudden increase of platelets without medication 4 months 1 week ago #65540

  • GrouchoMarx
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Dear all,
Since I shared the bad news i want to share also still good news.
on 3rd January i was 43000 with 15mg pred

today 10th january i was 74000 without medication for order prescription from 4th January...

Not even doctor could explain it....

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Sudden increase of platelets without medication 4 months 1 week ago #65544

  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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That last Dex pulse did more for you than expected?

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Sudden increase of platelets without medication 4 months 1 week ago #65545

  • GrouchoMarx
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The last Dex pulse took place one month ago. After 0ne week I.was on 39.000. Last week i was on 43000 and today on 74000....
Maybe i can keep it like this and forget all meds..... crossing fingers.

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Sudden increase of platelets without medication 4 months 1 week ago #65567

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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That's great! The thing about ITP is that it's unpredictable. I've had counts go up with no explanation. We always assume that counts will drop if we don't treat but that isn't always the case.

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Sudden increase of platelets without medication 4 months 5 days ago #65593

  • GrouchoMarx
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Today 18th January my count dropped to 43000.
Still happy because according to my doctor I dont need medication. We are in a "wait and see" mode with tests every 10 to 15 days if no bleeding (I never had any bleeding anyways).
However, he couldnt explain why it wents up to 74.000 or dropped to 43000. Something must have caused it. It cant be magic and thats why I am not happy about the current research situation on ITP. I had a nice 74000 when I was on holidays in Spain and a 43000 back on my job to Estearn Europe. is it the polution? Was the cold I had before the 74000? was the Omeoprazol 40 mg i took until 3 January?
Well..... I hope the research interest in ITP increases to leave the middle ages medical approach because I feel like we can as well put a chicken leg over or doors to fight it...:(

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Sudden increase of platelets without medication 4 months 5 days ago #65594

  • b2h
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GrouchoMarx wrote: Today 18th January my count dropped to 43000.
I feel like we can as well put a chicken leg over or doors to fight it...:(


hahaha I like that.

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Sudden increase of platelets without medication 4 months 3 days ago #65601

  • johnmerrick
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diet?

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Sudden increase of platelets without medication 4 months 1 day ago #65609

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Groucho:
Platelet counts fluctuate constantly, and so do the antibodies that destroy them. Illnesses and medications can have an affect on platelets too, but a difference of 31k in a week or more isn't a surprising occurrence. Hopefully you go back up a bit from here.
The following user(s) said Thank You: GrouchoMarx

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Sudden increase of platelets without medication 3 months 3 weeks ago #65637

  • GrouchoMarx
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I am not on diet but i try to eat less hidrats.

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Sudden increase of platelets without medication 3 months 3 weeks ago #65638

  • GrouchoMarx
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Thanks for the support.

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Sudden increase of platelets without medication 3 months 3 weeks ago #65639

  • GrouchoMarx
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55000 platelets today on January 28th...
I am happy I might have left behind those horrible corticoids that destoyed my life literally....
I want to resume playing soccer. The doctor told me after 70,000. Crossing fingers

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Sudden increase of platelets without medication 3 months 3 weeks ago #65640

  • GrouchoMarx
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:)

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Sudden increase of platelets without medication 3 months 3 weeks ago #65649

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Good! Your counts are just bouncing around at a safe number for now.

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Sudden increase of platelets without medication 3 months 3 weeks ago #65662

  • GrouchoMarx
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Crossing fingers.

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Sudden increase of platelets without medication 3 months 3 weeks ago #65663

  • GrouchoMarx
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Crossing fingers

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Sudden increase of platelets without medication 3 months 2 weeks ago #65707

  • GrouchoMarx
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Today 8th February, platelets count dropped to 39000..... crossing fingers to keep it over 30000. But the pattern is to go down unfortunately.
I was on weekend 2 weeks ago to the mountain and my platelets were 55000. I left Spain with 73000. Could it this environment be the one pushing down my platelets? Mmmmm

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Sudden increase of platelets without medication 2 months 1 week ago #65971

  • sillyman
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Keep eating and drinking whatever you ate and drank. I strongly believe natural remedies can cure us. All the best. Keep it up.

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