I developed hemolytic anemia in 1999 and ITP in 2005. Treatments have been splenectomy, prednisone, IVIG, and Rituxan.
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In January I started having alot of hot flashes- like hourly. This kept up and then bruising and fatigue over the next couple weeks, then I knew my ITP was back. Got it confirmed 2/9 and started on steroids. Since then my platlets have been up to 350k and down to 19k with different steroid doses. The hot flashes are coming only when platlets are low. So maybe for some people it can be related??
When my daughter, now in remission, had ITP as a teen, she would suddenly feel fatigued and her cheeks would flush to the point of appearing scalded. This seemed only to happen at rest, and only when her platelets were on the low side. She wasn't on steroids or any other treatment at the times this happened. I found it curious, but never got an answer.
I know this is an old post but I'm so glad to know I'm not along with this same symptom. Along with petechia, hot flashes are one of my tells that my platelets are low. I'm 47 and have been fobbed off for the last 6 months, since diagnosis that 'it's just the menopause'. To be honest I've find it quite ageist, they wouldn't be saying this if I was 37 and I only get the hot flashes when my platelets drop. Plus I've been tested, I am definitely not going through the menopause, FSH 4.6 and my estrogen is high The curious thing is they were worse before I had an IVIG treatment and up until very recently were only what I could describe as hot head 'washes'. I too have had no explanation from the Hematologists, in fact I think they are fed up with me talking about my hormonal symptoms as it's not their 'department' even though it's absolutely tied into my platelets being low.
Has anyone had any joy with an explanation of why and if you don't mind me asking are you ladies also around menopausal age?
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