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TOPIC: same dosage two weeks in row and number falling.....

same dosage two weeks in row and number falling..... 1 year 2 months ago #62668

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Yes, I know. I don't like it at all. I've been taking aspirin.

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same dosage two weeks in row and number falling..... 1 year 2 months ago #62675

  • johnmerrick
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is the aspirin somehow causing an increase ?

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same dosage two weeks in row and number falling..... 1 year 2 months ago #62678

  • Sandi
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Nah.. I hadn't taken it in a while and just started again when I got my last count. I'm supposed to take it as long as counts are over 50k, but I get lax.
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same dosage two weeks in row and number falling..... 1 year 2 months ago #62699

  • johnmerrick
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well got my appointment with the rheumatologist switched from May to march 23rd. all results are in no need to wait until May.

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same dosage two weeks in row and number falling..... 1 year 2 months ago #62701

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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That's good!
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same dosage two weeks in row and number falling..... 1 year 2 months ago #62778

  • johnmerrick
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checked count today 273 up 20 from 253. was 293 then i was worried it was getting to high then it went down to 253 then i was worried i was falling to fast-drop of 40- now 273. my count is very dependent on extra protein. 2 scoops of protein gives me 260 or higher one scoop 240-250. no extra protein around 220-230.

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same dosage two weeks in row and number falling..... 1 year 2 months ago #62779

  • MelA
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Johnmerrick my hematologist would consider your counts of 273, 253, 293 all the same.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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same dosage two weeks in row and number falling..... 1 year 2 months ago #62785

  • mrsb04
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So would mine.
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same dosage two weeks in row and number falling..... 1 year 1 month ago #62961

  • johnmerrick
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well i saw the rheumatologist. she said she is 80% sure i have lupus- i thought she would say that.i told her i had another doctor lined up just to see what he said. she said there were two columns and you have to have 4 things in total and at least one from each column to say that you have lupus i have 3. i do not want to start taking Plaquenil until i talk to the other doctor and have 4 things not 3.

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same dosage two weeks in row and number falling..... 1 year 1 month ago #63087

  • johnmerrick
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just checked my CBC my count is 281 which is good but my hemoglobin just tanked a month ago it was 134 now 125 i lost 9 points in a month. could be the lupus?

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same dosage two weeks in row and number falling..... 1 year 1 month ago #63117

  • johnmerrick
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re did my blood work hemo is 133 so all is good. found out your hemo can vary throughout the day. platelet count 303.
also saw other rheumatologist he said i have lupus. i have Plaquenil but i'm not going to take it yet cause i still am not convinced i have lupus i'd like to see one more piece of evidence that i have before i take this drug for the rest of my life.

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same dosage two weeks in row and number falling..... 4 months 3 days ago #65602

  • johnmerrick
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update i'm at 252 so all is good.
thank you everybody for your comments.
good luck to all.

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same dosage two weeks in row and number falling..... 4 months 1 day ago #65610

  • Sandi
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That's great news, John! I'm glad you're in a good remission. Thanks for the update!

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