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ITP caused by surgery?? 7 years 11 months ago #39548

  • Isabelle
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Hi there
I had breast implants a couple of years ago - 2 months later I had a platelet count of 1 and have had continued episodes of low platelets since. I'm convinced my platelet count is related to the implants and some sort of allergic reaction to them but no doctor has been able to tell me whether or not this could be the case. Has anyone had a similar experience?
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ITP caused by surgery?? 7 years 11 months ago #39555

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Isabelle:

I have read many reports of people acquiring autoimmune disorders after having implants. It's more of an autoimmune response than an allergic one. It's also possible that the trauma to your body from the surgery triggered ITP, or a medication that you took post-surgery. Some people are predisposed to certain autoimmune disorders and at one point in life, something happens to trigger it.

The doctors can't tell you for sure because there is no way to prove it. Removing the implants may not reverse the situation.

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ITP caused by surgery?? 7 years 11 months ago #39623

  • DeeDee Marie
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Isabelle:

In my younger years, I let a plastic surgeon talk me into a chin implant. I ended up having a terrible allergic reaction to this. My face starting scarring on my chin and after a while I started wheezing all the time. It took me 3 months to talk the surgeon into taking it out. After taking it out, I immediately felt better. As far as your platelets go, it may take some doing to get them to go back up--you just never know.

Sandi:
I am scheduled for surgery tomorrow. I tore my rotator cuff in my shoulder about a year ago. I finally had an MRI in January and found out it was a really bad tear. The pain is getting unbearable. In the last 3 days my platelets have gone down about 40,000 and I am worried about my surgery causing an ITP relapse. Have you heard of very many people getting a relapse from their surgery? Just wondering what your thoughts are? I am more than a little worried that I may come out of remission since this is what happened in July 2010. But, I am not going to sit and worry about--just get through this surgery first :)

Dee Dee

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ITP caused by surgery?? 7 years 11 months ago #39628

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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DeeDee:

It's possible that your remission could end, but it's also possible that you'll be just fine. Sounds like you really need the surgery, so there's not much you can do about it. You know worrying won't help. :)

I had surgery almost two years ago on my neck. My counts held up. I had a titanium rod put in and was also worried about an autoimmune response. So far, so good, although I probably would just blame any problems on Lupus or medications anyway.

Good luck - I hope it all goes well.
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ITP caused by surgery?? 7 years 11 months ago #39629

  • Melinda
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I just had surgery in September - put under, pain meds and all that - my count didn't tank.

That torn rotator cuff is very painful, I'm sorry DeeDee you are going through this - but if you are like my friend, you will be so happy with the results once healed.

Good luck!

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ITP caused by surgery?? 7 years 11 months ago #39681

  • DeeDee Marie
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I have a sling contraction on my right arm and am not able to type very well. My platelets did go down right before surgery, but were still safe. I will get them checked in another week. I,ve been in so much pain that I needed to do something! My ortho doctor said his platelets are about 80,000 and he has never had ITP. Thanks for your replies! Will let you know how it goes on the platelets.

Sandy,
I too am worried about an allergic reaction--but am still glad that I did the surgery! I also have a slight tear on the left arm--but nothing compared to the right arm.

Thanks!
Dee Dee

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ITP caused by surgery?? 7 years 11 months ago #39684

  • Melinda
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Good to see you DeeDee - sounds like the surgery went well, let the healing begin!

Take care!

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ITP caused by surgery?? 7 years 11 months ago #39685

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Get better soon, Dee Dee! I'm glad all went well.
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ITP caused by surgery?? 6 years 1 month ago #52321

  • Lottie2016
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Hi Isabelle
I had breast implants 4 years ago and my platelet levels also hit 1, two months after the procedure. Like you, I've had multiple episodes of low platelets since and have had numerous treatments - prednisolone, dexamethasone, rituximab... I'm also convinced that my implants have caused ITP and have had this conversation with numerous doctors, but all bar one tell me I'm wrong. I'm desperate to figure out if all this is caused by the implants as if a reversal of the procedure could rid me of ITP, I would do it tomorrow. Did you have any success getting any further advice on this?
Many thanks & best wishes

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ITP caused by surgery?? 6 years 1 month ago #52323

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I believe that ITP can be triggered by anything. Any trauma to the body such as a surgery or implant of a foreign object could be a trigger. Medications, viruses, vaccines, herbal supplements, etc have been known to trigger ITP so why wouldn't a breast implant? If one is predisposed to autoimmune disorders, anything could cause it to appear. I doubt that removing the implants would cause ITP to remit though.

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ITP caused by surgery?? 6 years 1 month ago #52324

  • DeeDee Marie
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Lottie,

Over a year ago I posted this remark which I'd like you to read:

"Isabelle:

In my younger years, I let a plastic surgeon talk me into a chin implant. I ended up having a terrible allergic reaction to this. My face starting scarring on my chin and after a while I started wheezing all the time. It took me 3 months to talk the surgeon into taking it out. After taking it out, I immediately felt better. As far as your platelets go, it may take some doing to get them to go back up--you just never know."


I'd like to add, that if I had continued to believe the doctor that did my surgery (he didn't want to remove the chin implant), my face would have continued scaring (in the chin area). To this day, I still have some scars from the implant and had a hard time getting anything done about it. My chin was never the same--it was actually nice until he screwed it up. And, I have another friend who came down with severe RA and some lung damage due to her breast implants. So it's something each of us have to ponder and try to figure out on our own as each case is different. I knew I was severely allergic to the implant (silicon) that the doctor put in me and he assured me that I'd be fine. At the end of the ordeal I almost had pneumonia and was wheezing really bad--which had never happened to me before.

I will also say that I have a girl friend who has breast implants and has never had a problem. We are each different and individuals. I know my decision was the right one to make at the time--even though it was very stressful; I had just wished the doctor would have believed me and took it out sooner.

Dee Dee

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ITP caused by surgery?? 2 years 7 months ago #66633

  • KimInATL
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Hi Lottie - I *just* had breast implants post-double mastectomy this past August and my platelets tanked for the first time every just 4.5 months later - was admitted to the hospital with 3k this past January. Been dealing with this ITP rollercoaster ever since. How are you doing? Still struggling with your #s? Do you still have your implants? I'm going to get mine removed as soon as my I can get my levels up to "surgery-safe levels." I realize it might not reverse my ITP but I hope to avoid further autoimmune issues. My thyroid is now going haywire too. I am beside myself with all of this/ :( I really think the implants are the cause of all of this - I was fine beforehand. So much research has come out connecting implants to autoimmune disease. ITP is so rare I think it would be hard to prove a statistically significant connection even if it is there.

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ITP caused by surgery?? 2 years 7 months ago #66634

  • KimInATL
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Hi Isabelle,

I'm posting the same response to you that I posted to Lottie below.
I *just* had breast implants post-double mastectomy this past August and my platelets tanked for the first time every just 4.5 months later - was admitted to the hospital with 3k this past January. Been dealing with this ITP rollercoaster ever since. How are you doing? Still struggling with your #s? Do you still have your implants? I'm going to get mine removed as soon as my I can get my levels up to "surgery-safe levels." I realize it might not reverse my ITP but I hope to avoid further autoimmune issues. My thyroid is now going haywire too. I am beside myself with all of this. :( I really think the implants are the cause of all of this - I was fine beforehand. So much research has come out connecting implants to autoimmune disease. ITP is so rare I think it would be hard to prove a statistically significant connection even if it is there.

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ITP caused by surgery?? 2 years 7 months ago #66639

  • Lottie2016
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Hi Kim
I have now had my implants removed as my autoimmune disorders just escalated severely. It’s almost a year now since I explanted and I’ve seen little improvement as of yet but I remain hopeful that my body at least has the opportunity to heal now. Are you in the Facebook group “Breast Implant Illness”? There are many women in very similar situations to you who have been completely healed by explanting. Please don’t let your autoimmune issues get any worse. Mine have become devastating . Good luck and best wishes

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ITP caused by surgery?? 2 years 7 months ago #66641

  • KimInATL
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Hi Lottie,
Thanks so much for the reply. And I'm so very sorry your autoimmune issues have gotten worse. :( I'm so glad you got your implants out though! When did you do that? Did you have any issues getting your platelets up high enough to have surgery? This is my current problem -I'm in a catch 22, where I believe my implants caused my ITP but my ITP is preventing me from getting them out. @$%^T@%$^%!#%!#%!. I'm sure you know that feeling. I am in the BII facebook group. It's very scary to see the road I'm going down. I am worried about my autoimmune issues cascading, which I believe is already happening after such a short time and it sounds like is what happened to you. I would love my current issues to reverse themselves post-explant but I will be happy if explanting prevents further issues.
Sending all my best to you. <3

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