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(5 Mar 2022) My platelet count was 150
- drbean7218
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4 Mar 23 - 178
22 Apr 23 - 166
5 Jun 23 - 190
22 Jul 23 - 152
28 Oct 23 - 172
18 Dec 23 - 193
5 Feb 24 - 166
23 Mar 24 - 174
The combination of current treatment:
a. Cyclosporine A - 100 mg daily (am: 50 mg, pm: 50 mg)
b. Azathioprine - 50 mg
c. Folic acid - 5 mg daily
d. Famotidine - 20 mg daily
e. Acyclovir - 800 mg daily (am: 400 mg, pm: 400 mg)
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- Vdeutsch85
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- Sandi
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Vdeutsch85 wrote: It may or may not be. From personal experience, I responded to IVGs the first 3 or 4 times, but did not respond the last time. It is probably worth getting a CBC done. Have you done any permanent treatments?
I was nearly finish the treatment, since my platelet count increased to 279 in Apr 2013. However, it dropped to 188 and 4 within a week in May 2013. We have no idea why did the platelets dropped dramatically?
Now, my treatment is
a. 15mg prednisolone per day
b. 200mg Cyclosporin per day
c. 500mg Tranexamic acid per day
did my treatment too light or not?
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- drbean7218
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Is it possible to perform another IVIG treatment after a week of previous one?
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- Sandi
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Are you using the Tranexamic acid even with high counts? I hope not!
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Jul 12 - 4 (beign to use prednisolone and Cyclosporin)
Aug 12 - 28 (after 1st injection of IVIG)
Oct 12 - 75
Nov 12 - 18 (start 2nd injection of IVIG, begin to use Tranexamic acid)
Jan 13 - 50
Feb 13 - 10X (begin to reduce the quantity of prednisolone and Cyclosporin and reduce 25% of them each time)
Mar 13 - 15x (stop using Tranexamic acid)
Apr 13 - 279
7 May 13 - 188
14 May 13 - 4 (start 3rd injection of IVIG)
20 May 13 - 99
Now - may be 4
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1. It has side effect on me, they areVdeutsch85 wrote: That is a lot of treatments at one time. Do you have a lot of side effects?. I will be curious to see what your counts are. From personal experience, I did not respond to prednisone and I was at 4 last week on cyclosporine. I also did a failed round of rituxin. The only thing that seems to be effective for me is Nplate. I hope your counts go up soon!
a. weight gain
b. a lot of acne in my face
c. easily get flu, it happened monthly when my platelet count increased greater 100
2. For more details of my platelet count, please see another reply
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We started 4th injection of ivig
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- Sandi
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Roberta, I'm not sure if you were aware of this or not, but Vitamin C can help symptoms a bit. It improves the strength/integrity of blood vessels making a bleed less likely. It can also help bruises to be less severe. It wouldn't hurt to start taking some.
Vitamin C is required for the synthesis of collagen. It is an important structural component of blood vessels, tendons, ligaments, and bone. Vitamin C helps some of our most important body systems like the skin, bones, teeth, blood vessels, cartilage, tendons and ligaments depends on collagen. And the integrity of collagen, in tum, depends on vitamin C. It also increased bowel tolerance phenomenon serves not only to indicate the amount which should be taken but indicates the unsuspected and astonishing magnitude of the potential use that the body has for ascorbate under stressful conditions. Vitamin C is one of many antioxidants.
Antioxidants are nutrients that block some of the damage caused by free radicals, which are by-products that result when our bodies transform food into energy. Vitamin C also helps prevent atherosclerosis by strengthening the artery walls through its participation in the synthesis of collagen, and by preventing the undesirable adhesion of white blood cells to damaged arteries. An adequate intake of the vitamin is highly protective against stroke and heart attack.
www.nutritionalvitamins.org/vitamins/vitamin-c.htm
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That is interesting. I do get a lot of vitamin c. I eat so many clementines that my co-worker says I always smell like citrus. I'm wondering if that could be a reason that I've been really low but no bleeding? I also take multivitamins and folic acid. Who knows
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Enjoy Disneyland with your grandchildren, and try and forget about ITP as much as possible!
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I hope the system stop to attack this time
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Is it good or not
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I am back to home today and resume my job duty this Friday.
My doctor adjusted the treatment
a. 15mg prednisolone per day
b. 250mg Cyclosporin per day (increased 50 mg per day)
c. 750mg Tranexamic acid per day
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At this moment, I won't take that surgeryVdeutsch85 wrote: I have gotten that impression from my first doc too. Do your research and figure out what is best for you!
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