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(5 Mar 2022) My platelet count was 150 2 years 1 week ago #72211

  • MelA
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Interesting you had the Shingrix shingles vaccine - I was told not to get it due to my ITP.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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(5 Mar 2022) My platelet count was 150 1 year 11 months ago #72291

  • drbean7218
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Interesting you had the Shingrix shingles vaccine - I was told not to get it due to my ITP.


My right eye was optical disc swelling in last year summer holiday.  The doctor referred to my previous medical history and guess it was caused by VZV meningitis.

My family doctor strongly recommend me to have Shringrix Shingles vaccine. Its worth to do it, since the treatment for VZV meningitis was
very tough.

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(5 Mar 2022) My platelet count was 150 1 year 11 months ago #72292

  • MelA
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It was my immunologist who told me not to get the Shingrix vaccine - I trust him more.

I wasn't sure what VZV meningitis was so searched.    Your doctor "...guess it was caused by VZV meningitis."   
Did you have shingles at the time of this optic disc swelling?  I think I'd really rather have a positive cause because there are many causes for the swelling.

I have had shingles 2x - hematologist knew it was shingles and boy so did I!
Even having had shingles 2x and knowing I could get it a 3rd time [have a friend who did] I won't get it yet.
I'm very glad you had no complications from the Shingrix vaccine!   
Continued good luck drbean!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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(18 Nov 2022) My platelet count was 178 1 year 2 months ago #72887

  • drbean7218
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My platelet count from May to Dec 22 are as follows;
14/05/2022 144
25/06/2022 151
20/08/2022 148
15/10/2022 171 (infected with COVID-19)
31/10/2022 186
18/11/2022 178

The combination of current treatment:
a. Cyclosporine A - 100 mg daily (am: 50 mg, pm: 50 mg)
b. Azathioprine - 50 mg
c. Folic acid - 5 mg daily
d. Famotidine - 20 mg daily
e. Acyclovir - 800 mg daily (am: 400 mg, pm: 400 mg)

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(18 Nov 2022) My platelet count was 178 1 year 2 months ago #72894

  • MelA
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Good to see you drbean!  Your count is doing great - interesting covid increased your count.
Are you still in Hong Kong?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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(7 Jan 2023) My platelet count was 169 1 year 2 months ago #72895

  • drbean7218
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Hi MelA

It's good to hear from you.  I am still in Hong Kong.

My count is doing great so far, espcailly from Oct 2022. 

I am not sure due to infection of COVID-19 or a new manager is transferred from other department.

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(7 Jan 2023) My platelet count was 169 1 year 2 months ago #72896

  • drbean7218
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My platelet count was 169 on 7 Jan 2023

The combination of current treatment:
a. Cyclosporine A - 100 mg daily (am: 50 mg, pm: 50 mg)
b. Azathioprine - 50 mg
c. Folic acid - 5 mg daily
d. Famotidine - 20 mg daily
e. Acyclovir - 800 mg daily (am: 400 mg, pm: 400 mg)

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(5 Mar 2022) My platelet count was 150 1 year 2 months ago #72897

  • drbean7218
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I didn't have shingles at the time of this optic disc swelling.

My doctor said that the symptom might due suppressed due to Acyclovir.

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(7 Jan 2023) My platelet count was 169 1 year 2 months ago #72909

  • ImPatient
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Does Famotidine also have something to do with your ITP? It's an allergy medicine?
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(7 Jan 2023) My platelet count was 169 1 year 2 months ago #72913

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Does Famotidine also have something to do with your ITP? It's an allergy medicine?

Famotidine is an H2-receptor antagonist.
www.mayoclinic.org/drugs-supplements/famotidine-oral-route/precautions/drg-20072972?p=1
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(5 Mar 2022) My platelet count was 150 1 year 2 months ago #72927

  • Margaret k
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I had no adverse effects from the shingrix  vaccine either.

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(7 Jan 2023) My platelet count was 169 1 year 1 month ago #72950

  • drbean7218
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Does Famotidine also have something to do with your ITP? It's an allergy medicine?


I am not sure, since Famotidine has been used when I was taking  Prednisolone .  However, my doctor didn't take that out even I wasn't required to take  Prednisolone .

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(7 Jan 2023) My platelet count was 169 1 year 1 month ago #72951

  • MelA
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When taking prednisone as us ITPers do we should be taking something to protect our stomach - famotidine would do that.  I don't know if it is needed when taking the others.   If you want you could ask your doctor if it is still needed.   
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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